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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Pills, eh? As you know some talented sscientists and doctors in Ontario came up with a pill,called repoopulate. It’s not available on the market. There is also a prominent doctor in Alberta who makes his own pills to give to select patients. I wrote to him but he did not respond. I’m very interested to know more about what these Taymount folks are up to. A good money maker they have there if they are doing this the easy way. As it was they were not doing colonoscopy route,which is how USA doctors and the eminent Dr Borody do things.@perrier i find the rumor very odd since Canada is so conservative medically....but British Columbia is a little different so who knows. Maybe Health Canada is going to OK it for IBD? I do know it wont be done traditionally, but using pills.
Unfortunately that is way too much carb for my body to deal with. It would give me huge swings in blood sugar and I would end up in a state of collapse. Just adding a teaspoon of oats to my yoghurt 3 times a day pushed my blood sugar up too much.I increased my natural fiber to grow a healthy microbial army and boy is it ever working. This is probably the best I've felt. The first month I was just adapting and I had so-so results. Definitely no more constipation or IBS but this month my energy is coming back and it's very exciting. I don't have h.pylori though so *shrug* But anyway, here is kinda what I eat in a day....
breakfast: 2 bananas, soy milk (or an apple)
lunch: big green smoothie with at least 1 cup of blueberries, 3+ cups of greens
snack banana
snack a bunch of beets
snack a bunch of carrots with hummus
supper: huge salad with quinoa (and more veggies, purple cabbage, cucumber, maybe avocado etc.) with vinegar dressing
or beans with a little rice
I do tend to eat at least one serving of beans some time during the day. I started out taking digestive enzymes but really that's no longer necessary, everything is going pretty smoothly.
Different people have luck with different things though like Kefir, Kombucha, Activia Daily (yogurt)
So far though, this is definitely the best I've felt in a very long time. Fiber for the win. I've tried fiber supplements before and whole wheat - flat out didn't work for me though. Eating veggies and fruits seems to do the trick (for me at least.)
Thanks Daffodil@perrier yes we seem to have quite a few doctors who are involved in this in canada. apprently it is supposed to be $5000 for 10 poop-pill transplants. or maybe 5, i cannot remember. perhaps a simple phone call to taymount in england would give us the info
Thanks Daffodil for your support; this took place in 2014. We had to pay at the time of booking half or more than half for the fecal infusions. We we in the most expensive category, with multiple infusions, so to speak for ME and ibs.@perrier did you pay taymount by credit card? if so, you can dispute the charge. they cant charge unless a service was rendered
i am not even surprised, so many try to take advantage of us because they know we are desperate
Dear Daffodil@perrier this has made me very upset. I am very angry, they cannot do that,. why did you not fight this? I am trembling with anger
sorry I have issues LOL
i understand. i also let a lot of things go that i shouldnt have because of all the stress at the time. yes, I think 160 days is the time limit. maybe up to a year in some cases. i have heard of companies doing something unfair but this was just nuts....just blatant theft! and from sick people. how do these people live with themselves? i'd like to call them and give them a piece of my mind. would you like to make a website about what they did to you? it will affect their business and they might return the money. since they might expand into BC, they wouldnt want this sort of publicityDear Daffodil
You are so sweet, I thank you. And you just taught an old dog a trick, thanks. I never thought of just calling the credit card company. Now it’s been several years, and so I suspect I would be told it was too late. The stress was enormous then, our family member was in hospital,we didn’t know how long it would be,and where it was all going.
This devastating illness has shown me a dark side of some folks who work in the “medical help” fields.
Dear Daffodil@perrier this has made me very upset. I am very angry, they cannot do that,. why did you not fight this? I am trembling with anger
sorry I have issues LOL
Here is what the shysters said: the fecal transplant was reserved for you, so we have to charge.i understand. i also let a lot of things go that i shouldnt have because of all the stress at the time. yes, I think 160 days is the time limit. maybe up to a year in some cases. i have heard of companies doing something unfair but this was just nuts....just blatant theft! and from sick people. how do these people live with themselves? i'd like to call them and give them a piece of my mind. would you like to make a website about what they did to you? it will affect their business and they might return the money. since they might expand into BC, they wouldnt want this sort of publicity
Dear think tank,Why don't you sue them?