[puts moderator hat on]
Min... lots of discussion went on about the forum rules and moderation tactics here:
http://forums.aboutmecfs.org/showthread.php?2144-Comments-on-the-Forum-Rules/
The thread was locked before I arrived, but I think it would be a worthwhile read to see how the rules were created and the philosophy behind moderation. You're welcome to feed back to any of us mods about moderation tactics in a PM or in the Nuts and Bolts section.
[takes moderator hat off, puts just-me-now hat on]
I think this is a worthwhile question to ask: is one method of treatment for ME morally or scientifically superior to another? Personally I think that methods that have been demonstrated to cause harm are inherently inferior than others.
I was and still am intensely interested in all treatment methods that are shown to be reasonably safe and are recommended by other members of this forum. Especially XMRV treatments as I am excited about XMRV for everybody's sake.
In early January after my neurologist told me she thought my condition was probably Post-Viral Fatigue Syndrome, and advised me to self-treat it in the way I did before, I decided to try a variety of different treatments. I originally intended to try one at a time in order to make my method a little more 'scientific' (a fruitless pursuit really as other members have commented in my "calling all statistical people" thread).
I ended up being a little haphazard in my process. Here are the things I tried: elimination diet, paracetamol, zantac (both of which forum members actually cautioned me against, but I took anyway as I believe that over-the-counter remedies are safe in small doses... the zantac only had the effect of reducing the cold sores which had arrived at the same time as I got sick), pacing, pro-biotics, dark chocolate and vitamin supplements. I was
desperate to get well. This desperation led me to ask for prayer wherever possible. I thought: "Well, this can't hurt." I wasn't expecting it to actually work to this degree of improvement; I simply expected more placebo-ey effects like slight reductions in symptoms and a feeling of peace. In the end it was the only thing that did work as far as I can tell to any significant degree, except paracetamol which subjectively seemed to lead to reasonable if slight improvements.
From what I can see, threads on Shamanism and Buddhism are accepted and welcomed here as I'm sure would Sufi/Islamic healing practise, Hindu ritual and whatever else there is. Many of the posters accept these beliefs as facts, or at least treat them as facts for the purposes of discussion.
I have learned a lot from reading posts like that here about religion. In fact not so long ago we had an interesting discussion about whether people are 'to blame' somehow for their illness and I found that conversation really helpful. Some people
appeared to state as fact that blame is implied in sickness which I disagreed with. I felt that was an important discussion to have, and I learned a lot about the concept of karma which was not quite what I thought it was. There was also a posting which mentioned a Taoist story of a farmer, which I found transformational and helped me through some dark times when I thought I'd be facing bankruptcy and homelessness.
So, I personally am quite comfortable with discussions about religion in any shape or form (yes that includes you, flying spaghetti monster) as long as they are not personal or insulting. From my own experience in some pretty intense debates about faith, I find myself much more open to people who argue against my ideas in a funny, kind and respectful way. But that's just my sort of pragmatism I guess... as one of my (atheist, incidentally) co-workers quipped only yesterday "Getting angry at somebody isn't a great way to win them over."
Rachel xx