Thanks for the words of wisdom/warning - I appreciate it.
So sorry to hear about your relapse. Can I ask what your nagalase numbers were/are? How long were you on GcMAF and at what doses? (If you have a thread somewhere with this info, let me know, I don't want to make you repeat it all for no good reason). I'm feeling like I need to explore KMAF/GcMAF since my nagalase is high. I have been in contact with Sushi and will definitely continue to do so, what a wealth of info!
I started Gc-Maf -full dose on a weekly base- in May 2010. After 28 weeks, my Nagalase was 0.7. Sadly, I don't have my Nagalase at baseline. Despite my Nagalase level, I felt I improved on some aspects, but for other aspects, there was plenty of room of improvement. So, I continued to receive in total nearly 70 injections, full dose. Note that I had to stop the treatment a few times due to heavy headaches. Until beginning of this year, when I started to experience a relapse -which still continues- I first moved to a smaller dose(half) to finally quit Gc-Maf around August.
Since the relapse, my bloodwork is the worst ever: ESR got higher(still normal range though), my Thyroid antibodies got worse, my TSH got higher(still normal range). My T-helper cells increased in numbers(which is typical for autoimmune). I have a lot of questions concerning my relapse. I was supplementing Vit-D at that time, so I don't know if that might have caused the relapse. Also, ginger is very bad for me, and at that time I was eating more than usual Asian food. Perhaps I had too much ginger, which caused a relapse?
Lately, I'm also thinking -when I look at the amount of received Gc-Maf doses- I might just be a typical non-responder. I didn't had my Nagalase retested, lately. I assume it might be high. On the other hand, nobody really knows if Nagalase is a real bio-marker, since Yamamoto's work could not be replicated to date. More, in the Gc-Maf thread, you can find a report, where they tried to replicate Yamamoto's findings, and didn't succeed. They concluded that the three molecule's sugar is intact, so Gc-Maf doesn't work the way Yamamoto'describes in his paper.
There are lot of people experienced with Gc-Maf, some to good success, and others to failure. It's important to learn from them to avoid a relapse. Gc-Maf might help you, if you start slow, and low, and do not supplement with Vit-D. There are risks, it's experimental, and to date, nobody really knows what it does.