A.B.
Senior Member
- Messages
- 3,780
Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Perhaps this could be submitted to the IOM.
I made this after coming across the NIH site.
I haven't updated it with recent data, but here is my previous analysis:
http://forums.phoenixrising.me/index.php?threads/what-is-wrong-with-this-graph.18395/#post-279826
Note that the NIH has a (never imposed) mandate to award research funding based on societal impact (typicaly measured using DALYs). The reason why it is not accounted for is because the DALY studies including the recent one funded by the Gates Foundation chose to ignore CFS or ME. The figures I am using are from the Australian DALY study (adjusted for US prevalence), which is the only study to actually bother.
CFS/ME is underfunded by a magnitude of order (I used a logarithmic graph), which is to say that the funding needs to be increased by something like 20 times for its funding to be on par with asthma or depression. Underfunded by a magnitude of order means that a precise prevalence measurement is less relevant - 0.1% still means the funding has to increase by over 10x to be on par.
Note that the NIH has a (never imposed) mandate to award research funding based on societal impact (typicaly measured using DALYs).
I haven't updated it with recent data, but here is my previous analysis:
http://forums.phoenixrising.me/index.php?threads/what-is-wrong-with-this-graph.18395/#post-279826
Note that the NIH has a (never imposed) mandate to award research funding based on societal impact (typicaly measured using DALYs). The reason why it is not accounted for is because the DALY studies including the recent one funded by the Gates Foundation chose to ignore CFS or ME. The figures I am using are from the Australian DALY study (adjusted for US prevalence), which is the only study to actually bother.
CFS/ME is underfunded by a magnitude of order (I used a logarithmic graph), which is to say that the funding needs to be increased by something like 20 times for its funding to be on par with asthma or depression. Underfunded by a magnitude of order means that a precise prevalence measurement is less relevant - 0.1% still means the funding has to increase by over 10x to be on par.
New evidence on the allocation of NIH funds across diseases.
http://www.ncbi.nlm.nih.gov/pubmed/23488714
"I've been thinking for some time that we might need to start a petition to Gates or the Gates Foundation to help with our problem. They send millions to Africa for malaria treatment and research. How about a little help for an epidemic right here at home?