Eppstein Barr confirmed by blood test and blood smear

[Sarahloudobby]

I just had results back of a full blood count and tests and if confirmed I have/had EBV and that my
Erythrocyte sedimentation rate is 6 mm/h [0.0 - 7.0] the second part is apparently satisfactory.
I’m not sure what to make of it but it’s the first time a test has been positive for something.

 

[Judee]

Has your doctor mentioned treatment options? Will they be willing to give you antivirals? I would request a long cycle of them if they do...maybe even find literature from Dr Lerner or others somewhere on PR or elsewhere that you can show to them explaining that it can take several months to know if they are going to be effective for our disease.

I'm glad you finally have something of a diagnosis though. At least it gives you a place to start on maybe feeling better. I hope.

The other thing is there is a recent post on here by Mrparadise that talks about toxoplasmosis gondii. I downloaded some of what the doctor he wrote about has on his website and have been trying to read it. At one point I think I remember that doctor mentioning EBV and other viruses and how the t. gondii can assist the viruses in reactivating. I think. Memory is bad lately but I think I read something like that in his case studies pdf.

A doctor Amy Proul interviewed about long covid also mentioned that 1 in 3 people have been exposed to it at some point in their lifetimes and that it can also affect immunity and reactivation of viruses. I added it to Mrparadise's thread.

Anyway, hope you can get some help with the EBV from your doctors.

Edit: Are you holding a falcon in your new avatar?

 

[Sarahloudobby]

Thankyou so much. I have a doctors appointment on Monday morning. I will discuss it then and see what he days.
my avatar It’s a barn owl which has a melatonin condition causing it to have a red face rather than a white one.

 

[greyheron]

I just had results back of a full blood count and tests and if confirmed I have/had EBV and that my
Erythrocyte sedimentation rate is 6 mm/h [0.0 - 7.0] the second part is apparently satisfactory.
I’m not sure what to make of it but it’s the first time a test has been positive for something.

This is one of my biggest problems. My EBV (HHSV-6) will not go into remission and physical movement is what reactivates it. My symptoms are chronic fatigue, of course, PEM from the physical movement, and then the typical virus symptoms: swollen lymph nodes on my neck and under my chin, headache, light fever, sores on the tongue etc. I am taking 1500mg of Valtrex twice a day, but that still doesn't stop my flares. I'm planning to experiment with HBOT therapy next week to see if it helps put the virus back into remission. I also have POTS, so blood circulation is a big issue. If you find a good treatment of EBV, shoot me a message!

 

[cfs since 1998]

This is one of my biggest problems. My EBV (HHSV-6) will not go into remission and physical movement is what reactivates it. My symptoms are chronic fatigue, of course, PEM from the physical movement, and then the typical virus symptoms: swollen lymph nodes on my neck and under my chin, headache, light fever, sores on the tongue etc. I am taking 1500mg of Valtrex twice a day, but that still doesn't stop my flares. I'm planning to experiment with HBOT therapy next week to see if it helps put the virus back into remission. I also have POTS, so blood circulation is a big issue. If you find a good treatment of EBV, shoot me a message!

To be fair those are symptoms of ME/CFS, not EBV reactivation. Though many including myself believe EBV causes ME/CFS (at least in a large subset, if not all cases), there's a subtle distinction between EBV reactivation symptoms and symptoms of ME/CFS. But I think HBOT is a good thing to try and I might try it myself soon. Have you tried antiviral treatment?

 

[Teodora]

In my understanding EBV is not treated with Valtrex but with Valcyte or other antivirals. For some ppl herbal antivirals help too, high dose vit C iv. It can be very stubborn and it takes time and consistent treatment over time.

 

[greyheron]

Thanks for this, Teodora! I'll look into it!