GypsyGirl
Senior Member
- Messages
- 165
- Location
- North Carolina
Yay! I'm so happy that it worked well for you too! I just realized this week that I no longer avoid situations where I have to stand up. I even stood for about 40 minutes without thinking about it or getting tired!
That's wonderful!
My doctors don't believe me either When I did conventional allergy testing for mold all of my ME/CFS and POTS-like symptoms got worse after the poke test. I had to go sit in a coffee shop in a grocery store because I couldn't manage to go stand at the bus stop to get home.
After that I convinced the allergist to do a blind poke test on me with mold samples and something else (I didn't know what) on different days. After one set of the blind test my ME/CFS symptoms worsened and I sat in a lobby chair with my legs up. For the second blind test I went to the bus stop without an issue and found myself jumping around to keep warm (it was winter). After that the allergist told me the first day was mold but he still didn't believe me
Eep! I know that what a patient feels is "subjective", but it's frustrating being in a body that reacts so strongly to mold, being able to replicate the same responses from mold (over and over again, even with blind tests like you did), and then being disbelieved - which is different than saying "okay, so something's clearly happening, but I don't understand what". That disbelief is confounding when all evidence points to something clearly happening when a particular trigger is introduced. I'm glad you found some appropriate solutions that are giving bits of relief. <3