emergency report from China

Carrigon

Senior Member
Messages
808
Location
PA, USA
It may or may not be XMRV. It could be micoplasma. However, I wouldn't trust the CDC as far as I could throw them. It is an infectious disease, that's about all we really do know.
 

hanchuchu

Senior Member
Messages
145
Carrigon,

How about you T-cell, CD3/CD4/CD8? Have you tracked them peridically? That's important. What is the trend? Experts pay more attention on T-cell rather than syptoms.

If it is not HIV, XMRV, HTLV, we don't feel so scared. So it has a possibility to be cured.

I canot imagine what will happen if such a infectious disease cannot be cured. The end of human beings?

I have some confidence.
 

Carrigon

Senior Member
Messages
808
Location
PA, USA
T-cells are usually very low with CFIDS, but the doctors here still tend to ignore the results.

I believe an effective treatment may eventually come from immune modulators, in time.
 

hanchuchu

Senior Member
Messages
145
hanchuchu,

Have any of you tried LDN or methylation protocol?

No. I know people recommended me lots of medicines. But I am more comfortable with TCM. It is safe and works, at least can supress the virus.

I don't want to try too many medicines, which puts my life on risk. I think they are alternatives to boost CD4 and NK, some safe ones like " hostdefense".

In fact, my life has been ruined. I dare not to meet my beloved ones. I am living alone. Asking for assistance everday....

Sometimes, we have to reconcile with life itself. I also read religious books to seek peace there.

I believe the truth will come out in one or two years. Things are moving on. The amazing thing is that God created us an immune system, which is strong and hard to be damaged in a short time period. We still have time to fight. It's better than a plane crash or Haiti earthquake, right?
 
K

_Kim_

Guest
CDC cheated us again!

I confirmed with WPI, our CDC is unable to test XMRV.

hanchuchu,

Does this mean they are unable to find XMRV or unwilling to test for it?

(p.s. remember that it's not a good idea to say negative things about CDC or China in public. Please be careful)
 

Samuel

Senior Member
Messages
221
About the Chinese CDC? Not the one in Atlanta, Georgia? And only by people who live in mainland China? It might help newcomers to the thread (including from search engines) to say which CDC is meant, to avoid confusion.
 
Messages
10
Hello to every one,

I am not from China but from Europe.
I follow this thread very carefully as the situation concerns me personally as I am infected with some bug that can not be identified (got it after sexual intercourse). I had all of the symptoms that are pecurial to HIV acording to medical literature. The only gap are the tests (hiv tests among the others) - they can't prove any infection in my body. I was told to be AIDS fear phobia.

I came across the China situation last year and I can say it is exactly what has happend to me. I also met many people in similar situation, some of them occured to have a real phobia.
My opinion is taht it is hardly possible the bug can be transmitted by shaking hands, kissing, sweat or any other every day activity. I strongly believe (whatever it is) it spreads exactly the same way as HIV virus. This way the whole human being would be infected. I just don't believe that every infected individual is so humane to behave the same way as hanchuchu or the people as the ones from the BBC material. It would be normal reaction for the people in our condition to infect at least the ones who told us it is just a phobia. I would do this easly to all of the professionals who told me all of my symptoms are mentally created. It would be the only chance anyone would treat us seriously.

Kind Regards,
madday
 
K

_Kim_

Guest
madday, you are right. hanchuchu is a fine man, who, instead of acting out in retaliation, has furthered the investigations by tirelessly reaching out to researchers and the press. He is a living hero.
 

hanchuchu

Senior Member
Messages
145
Maddy,

if you are infected without a condom, it is totally different from us.

I have said this many times, in China, with the condom, it could be infected as well. Most people get infected when they receive oral sex without condom. Some was infected even with condom, like myself. Some people passed the virus to their children. Tell me how? the only explanation is the daily house contact can spread the virus. I don't want to argue. It is a fact. Saliva can pass the virus, no doubt. I am not sure whether the sweat will pass it or not, but one infected met me in person and told me he passed the virus to the child when huging. He had lots of sweat then.

Some people did take revenge on the socitey, some are spreading on purpose right now and some will pass the virus deliberately in the future. Because they want to save their families and the only way is to raise the public awareness through passing the virus.

Now, with my efforts, I see some hope, which is practical and in reach. It is moving forward. we are planing to form a committee to do more organized work, such as compile data, expose to more press/media, even demonstrate. people are fighting hard in China.
 
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10
I am very curious what the children or other members of families, who were infected by those "fear of AIDS" as a result of every day activities, were told by the doctors. It is not possible that the kids were told by the specialists that they suffer from "AIDS phobia"!?
Kind Regards,
madday
 

hanchuchu

Senior Member
Messages
145
I am very curious what the children or other members of families, who were infected by those "fear of AIDS" as a result of every day activities, were told by the doctors. It is not possible that the kids were told by the specialists that they suffer from "AIDS phobia"!?
Kind Regards,
madday

what is the point of our argument? None.

Believe me, the truth will come out in one or two years, even a few months. I will let you know it.

I am working on it and some scientists get invloved in now.
 
T

thefreeprisoner

Guest
Hanchuchu... _Kim_ is right; you are AMAZING.
There is a big star in the heavenly Hollywood walk of fame waiting for you, I am sure of it.

Rachel xx
 

hanchuchu

Senior Member
Messages
145
Hanchuchu... _Kim_ is right; you are AMAZING.
There is a big star in the heavenly Hollywood walk of fame waiting for you, I am sure of it.

Rachel xx

I believe there will be breakthrough after the chinese lunar new year if everything goes smoothly. I have found the right person. Believe me, the truth will come out. I have faith in him. He is willing and able to isolate the virus. He used to publish several articles on "science". He is a very talented scientist!

what I want is a normal life and being able to get back to my beloved ones. I don't want to live alone like a ghost for the rest of life.
 
Messages
10
what is the point of our argument? None.

Believe me, the truth will come out in one or two years, even a few months. I will let you know it.

I am working on it and some scientists get invloved in now.

It is not about "the point of my argument". I am just curious about the facts. What the kids or other "innocent" (without any risk of HIV nor sexual contacts) victims of the new bug were told by the doctors and specialists?

By the way I completely agree you are great, doing a great job and really appreciate all of your efforts.
It gives me some hope (as the XMRV matter) to find finaly the answer waht has happened to me and the others in the same condition I heve met.

Kind Regards,
madday
 

hanchuchu

Senior Member
Messages
145
It is not about "the point of my argument". I am just curious about the facts. What the kids or other "innocent" (without any risk of HIV nor sexual contacts) victims of the new bug were told by the doctors and specialists?

By the way I completely agree you are great, doing a great job and really appreciate all of your efforts.
It gives me some hope (as the XMRV matter) to find finaly the answer waht has happened to me and the others in the same condition I heve met.

Kind Regards,
madday

Madday,

I have mentioned your situation in my email to the scientist as a reference and I told him the virus may be spreading worldwide instead of just in china. If you want to take the chance to isolate your virus, I will talk to him and see what he will responde. I believe Hip, Carrigon and you, or even more people from the west can be part of the research if he agrees.
 
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10
As for me I would appreciate this opportunity. My symptoms were (and some of them still persists) like yours, as people from China describle on their blogs, so I can assume it might be the same kind of bug.
What is more I have diagnosis from one of the World leading prof. in CFS, and he wrote it is sure I have an infection of unknown origin.
One more thing as for my cd4 count. Although it returned to normal level, it is written in my diagnossis my cd4 cells have extremally low activity.

Regards,
madday
 
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