- Messages
- 9
I was thinking about this recently too. I have almost identical problems to the girls with EDS that I follow on IG, all except the hypermobility. The pots/dysautonomia, the ibs, gerd, delayed stomach emptying, the neurogenic bladder, interstitial cystitis, muscles/ joint pain, multiple allergies, raynaud's, chilblains, possible erythromelalgia, right down to the ridiculously sensitive easily damaged skin. But no hypermobility. At all. Although I do believe I have subluxed a few times. Like you, I am very stiff and creaky/crackly.
I've also been thinking perhaps it's another type of connective tissue disorder. Any connective tissue issue that affects you internally could lead to dysautonomia, surely. And dysautonomia certainly causes a lot of our symptoms. But according to google there are over 200 disorders that impact connective tissue.. so not exactly easy to narrow it down. :thumbdown:
ETA: my dad also some symptoms that could be caused by connective tissue problems although nothing like i have, indicating some type of genetic cause.
Hello Apple,
Indeed google says there are over 200 disorders that impact connective tissue. But is this list of disorders available? Has anyone seen it? Which are these 200 disorders?