EDS Ehlers Danlos Syndrome facebook page

[Allyson]

For those who have been interested in the EDS threads and its relationship to ME (discussed in this link)

http://forums.phoenixrising.me/index.php?threads/is-me-due-to-ehelrs-danlos-syndrome-stretchy-veins.20

There is now an EDS facebook page with over 9000 members so here is the link to like it.

http://www.facebook.com/#!/pages/EHLERS-DANLOS-NATIONAL-FOUNDATION/294028895335?fref=ts

 

[Allyson]

I notice from a quick read through that a lot of the EDS problems are the same as ours - fatigue PEM etc etc but with added joint hypermobility issues for some. Interesting if we could combine forces if the overlap is great enough....

 

[Allyson]

and some other EDS fb pages for EDS info


stiff zebras
https://www.facebook.com/groups/455374384560623/

EDS articles and info
https://www.facebook.com/groups/588817404473821/

EDS Australia
https://www.facebook.com/groups/598876153485778/

good USA Doctors
https://www.facebook.com/groups/1438285386415297/


good Australian Doctors
https://www.facebook.com/groups/287952358017187/

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