e-mail a day for the release of the Phase II info from the NIH/BWG

[RivkaRivka]

thanks to all who organized this campaign. i'm so so sick lately. wish i could do more, but i can't. so i really appreciate all everyone is doing!

i sent in my email for today, too!

 

[Otis]

You're great advocate and we all do what we can when we can.

TY for the emails.

 

[*GG*]

Is this being sent to all in 1 email or should it be sent individually?

GG

 

[George]

Is this being sent to all in 1 email or should it be sent individually?

GG

GG! (squeals of doggy delight, waggy tails, waggy tails, slurps and licks)

All in one is perfect. We tried to make it easy for us and annoying for them. ( grins)
If you send 1 each day ( with all the names in the TO; box) then by just changing the "subject" will confuse the spam filter and make sure they get through. If you have any other questions or I was confusing just ask away. And big Thank Yous!

 

[George]

Wooohhhooo! Morning round of e-mails sent! I stopped by the phase2 gmail account to see what kind of response that we are getting out. It looks awesome! Go Patients!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

 

[George]

By now I think everybody has seen Amy's health blog which says the results will be released, well , when they are released. (grins) I also got a reply from CFIDS AA. They were the only one to write me back on the subject.

Thank you for your message. The Blood XMRV Scientific Working Group has not yet received results from all of the laboratories testing samples for Phase II of the study. There have been some delays in testing samples. Unfortunately the initial target date for completing this phase was not met, but steady progress continues.

The CFIDS Association regularly updates its XMRV Resources page (http://www.cfids.org/xmrv/default.asp) and will post new information about this and other studies of XMRV as it is made available.

Thanks to everrrrrrry body you guys were wonderful to do the e-mails. Love and Hugs and slurppppy doggy kisses!!!!!!!!!

 

[*GG*]

I did this yesterday, will do again later today!

 

[leela]

Great work everyone!
How about directing them to a particular media outlet or patient organization to release the info to?