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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Yes i would like to hear if nk function has improved, maybe viral titres as well??
cheers!!!
I'm suprised you got a response Hixxy, alot of DR L's patients have trouble with correspondence.
I am in contact with a young member who is a patient of his & trying MAF314. They haven't had a great deal of improvement thus far.
Hi Heaps,
My NK absolute has improved. I don't think I have a function test. My reactivated EBV has also gone down.
Sushi
Any idea how long they've been on the MAF 314? Mustn't be very long at all.
I have a couple of thoughts on the method of dosing that Dr. E. is using for Cindy. Remember, she had been taking GcMAF at a relatively low dose, 25 ng, for over a year before Dr. Enlander started increasing her dose. Also, she has not been sick for many years. I am not sure how these two things may play together, but possibly, having taken GcMAF for so long before raising the dose, enough pathogens have been "pacmanned" so that she is not getting as much of an inflammatory response as she might have, had she raised the dose in the beginning months of treatment.
The past lymphocyte subset test I had done didn't have reference ranges for NK cells (see below image). What are the reference ranges supposed to be?
View attachment 6892
It seems a lot of the tests done overseas are more comprehensive. Even without the full NK function test.
reference ranges i have, total lymphocytes 1.1-4, cd20 .06-.6, cd56 .07-.6, cd3 .8-2.4, cd4 .5-1.6, cd8 .2-1, cd4:8 1-3.5
Hixxy, alot of your tests are in % so not sure how much these reference ranges will help??
cheers!!!
I've sent a message, will let you know when I get a response
You edited out the most interesting part of your post! I indeed would love to know of Dr L runs nagalase tests.
The past lymphocyte subset test I had done didn't have reference ranges for NK cells (see below image). What are the reference ranges supposed to be?
View attachment 6892
It seems a lot of the tests done overseas are more comprehensive. Even without the full NK function test.
Thank you. I think that's a good idea. You're right- it's possible we are using different terminology.
I think the word "cure" in the headline of the thread is an eye grabber.
His views on whether he believes this is the cure for CFS would be good for us to understand - in addition to any other insights he might have.
i comboed betaglucans for 2-3 days within the first 6 months of gcmaf and i immediately got back severe mouth candidosis, so stopped it immediately and candidosis gone in a few days.i remember using gcmaf inj twice a week at that time.
so i think betaglucans dont work with gcmaf
today after more than 48weeks of gcmaf candida problems and all immune suppression diseases are totally gone, i am even using interferon inducers by trl7 activation and intf makes immune suppression itself by lowering neutrophils but even getting neutr to as low as 29% had no effects on immune system, no candidosis, no flu, no pains, just fever 38.5 but that s interferon made by dentric cells and macrophages after stimulation by trl7 agonsists
i guess today my nagalase is fully normal, i will retest nagalase in july
Hi lobba123,
Do you think that the candida problem was due to the yeast in the beta glucans or related to an interaction with GcMAF, or something else?
As others said, 100% functioning is not necessarily the same as a cure. But we'll take it Most of us would spend all our money after we paid our bills, to get there and stay there.
I wonder if the longer we are ill the more damaged our immune system gets or infections go deeper, which is why people who take antivirals early on with cfs seem to have a higher success rate closer to the 95-100% then someone who started avs several years after having cfs, improvements still occurr but the 95-100% is alot more rare. Also being younger seems to have a better recovery too??
soc how long did your daughter have cfs before starting av's? Her immune tests will be interesting, will she be getting an nk function test as well??
cheers!!!