Well, guess what, Martlet. There is already a thread called "Your Funniest Cognitive Malfunctions" started by Brown-eyed Girl in the Community Lounge. The last post was made on November 19. Maybe you'd like to start it up again?
Thank you CFIDS Surfer! I really appreciate it. I'm so brainfogged I read and wrote posts about the Dr. Oz show for the last few weeks but forgot to tape it. Then woke up just in time to catch it but forgot to watch it.
Suddenly my wonderful neighbor calls me up and tells me to hurry and turn on Dr. Oz, they're talking about a retrovirus in CFS. I do but by the time I can get out to the living room and figure out all the remotes, it's pretty much over.
Do you all realize though that my neighbor actually called me about this? She just happened to be watching it! Wow. We rarely talk because I'm so bad off. I'm lucky she's supportive of me. Her whole family believes me, even her mother does!
I thought the show was fantastic. Dr. Donnica was awesome and Gina was very good and boy, she's been through a lot! and I like Dr. Oz, I never watched him before.
If I had been the patient I would have been all, "Excuse me, ahm exercise is a very complicated issue for PWC".
I loved the visual of the retrovirus. So that's how that works? That video screen he uses is incredible. No wonder Dr. Oz is so popular... I really don't think it's his hair.
Dr. Donnica - wonderful job!! You are such a clear speaker and great advocate for our community
Gina - thanks for being so open and sharing your story with the world.
Dr. Oz - you done good. You seemed sincere and caring and handled this with the kind of gravity I had hoped you would.
Dreambirdie, you ought to be proud for your efforts. Gosh, I remember how you coaxed us initially into sending Dr. Oz a letter. You got me to write to him and I'd never even seen his show.
Thanks, Kim. Though "coaxed" is probably an understatement. Pleaded incessantly in desperation??? maybe.
What I learned in the process was that even a group of seriously debilitated, chronically ill, and brain fogged CFS patients can have a POWERFUL influence when they focus their intention on a specific goal. Even from a couch or a bed you can have an influence! As WE did! And that is a really good thing.
Oprah?? As anne pointed out a while back, there's a great Oprah-type story here: heroic mother, fighting the odds and the establishment, founding an institute to find a cure for her daughter's devastating mystery illness...And succeeding!
Oprah DID say that she was going to knock our socks off (or something to that effect) during her last 18 months of production - so we'd better get on it!!! Since we started with her beloved Dr Oz, perhaps it wouldn't be as hard as you'd think......Think of it.....a whole hour....and then lots of feedback from all over the world, so she'd do a follow-up show.......OK I'm getting all carried away.......
thanks to dreambirdie for the inititave in making this happen.
never saw the dr. oz show before and now i know why....he's doofy and dull.
dr. donnica is great. she needs to get 1/2 hour of time to talk about the disease. she's intelligent, articulate and right on point.
i agree that it is important to have a deeper discussion about the range of how this illness affects people. while i appreciate gina...her situation appears to be mild/moderate when compared to mine...if you paid me a trillion dollars i could not force myself to go to work...it is physically impossible...so i think her talk about forcing herself out of bed each day to go to work is misleading...this is the misconception that many have about my condition...if i just push myself i could do it....no, if i push myself i'll faint and have a heart attack.
so while gina still is able to force herself to go on, there are many of us past that point...physically it would be difficult for any of us to be on a tv show...maybe they should include a video clip of someone in bed or on the couch....managing their lives thru a laptop, telephone and/or family/friends
gina did describe very well the defeat and dismay you feel when you first get ill and start seeing dr after dr....and then get called crazy/depressed/malingering, because they can't figure out what's wrong w/you. these dr's that you were raised to respect and trust suddenly treat you like a joke.
One of my good/kind dr's described to me what goes on in many docs minds when a patient like me walks into their office: 40 something white woman, thin, tired with unexplainable fatigue and pain...quickly we are stereotyped: Oh, no one of those...instead of feeling curiousity about our condition, they groan to themselves....another depressed woman. it also pains their med school trained ego that they don't know how to help us...but rather than ever admitting this, they dismiss us as depressed.
When he told me this I realized for the first time in my "privileged white American" life what it meant to stereotyped and looked down upon. It was an eye opening experience.
i'm happy that the program gave our condition some more exposure, but wary that it enforced already held beliefs that if we just push ourselves and/or exercise a little we'll be better....
what's next: a Frontline episode: the history, mystery, suffering and potential new hope in CFID's...the debilitating disease with the corny name.
Sorry, I'm way behind in reading all of your insightful comments, but I just wanted to make sure that someone posted the link to the Dr. Oz CFS/XMRV segment on YouTube (I'm guessing that someone on this forum posted it?!): http://www.youtube.com/watch?v=_WEUC7hRXzM.