Woolie
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I am very concerned about this:
This is an idea that Mark Edwards has been working on in psychogenic movement disorder. It a new neurosciency way of reframing the fundamentally psychological problem that he believes underpins psychogenic movement disorders.
I have yet had a chance to read the other material in detail, so I may be speaking out of turn, but I urge extreme skepticism regarding anyone who claims ME or CFS or both are due to "brain dysfunction". In most cases that I've seen, this turns out to be a reframing of the psychological explanation using neuroscience language.
We have seen this happen in the pain literature, where "central sensitisation" is the new neuroscience reframing of unexplained pain. Now its not your thoughts/feelings creating the experience of pain, its your "brain", but the idea is still the same - not "real" pain, just a "misinterpretation", and treatment is with psychoactive drugs and psychotherapy. Some patients feel reassured by the new language, sounds like doctors are not saying its "all in their heads" - but fundamentally, they are saying just this but in a much more palatable way. There's a lot of hoodwinking going on there, and in the FND literature. Let's be way of the same in our illness.
Neil Harrison talk translateon said:Cognitions and priming
Neil Harrison talk translateon said:This is an interesting topic, which addresses the question of how we think the functioning brains. stated in several important theories that brains are a kind of predictive machine. They predict what will happen in the world around them and compare that to what's really happening. A simple example of this is the catch of a ball. In real time we put our hand where we think it should be, and our brains get feedback from the handover where it is real. This must take place in real time. To catch the ball, we have our expectations of what is going to compare with the hand feedback that which is real.
You can apply the same idea to the relationship between inflammation and fatigue. Our brains predict a degree of inflammation in the body, and compare this with the signal arrives. If these two signals do not match, it could be felt as fatigue. These are things we are currently looking to see whether there is in those who experienced the most fatigue or chronic fatigue, a large difference between absolute levels and levels predicted by the brains.
This is an idea that Mark Edwards has been working on in psychogenic movement disorder. It a new neurosciency way of reframing the fundamentally psychological problem that he believes underpins psychogenic movement disorders.
I have yet had a chance to read the other material in detail, so I may be speaking out of turn, but I urge extreme skepticism regarding anyone who claims ME or CFS or both are due to "brain dysfunction". In most cases that I've seen, this turns out to be a reframing of the psychological explanation using neuroscience language.
We have seen this happen in the pain literature, where "central sensitisation" is the new neuroscience reframing of unexplained pain. Now its not your thoughts/feelings creating the experience of pain, its your "brain", but the idea is still the same - not "real" pain, just a "misinterpretation", and treatment is with psychoactive drugs and psychotherapy. Some patients feel reassured by the new language, sounds like doctors are not saying its "all in their heads" - but fundamentally, they are saying just this but in a much more palatable way. There's a lot of hoodwinking going on there, and in the FND literature. Let's be way of the same in our illness.