Dr Ian Lipkin's $1.27m gut microbiome study - crowdfunding campaign - news and updates

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Bob

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The Microbe Discovery Project team said:
Here's a reminder of the nature of the proposed gut microbiome study by Dr Lipkin.
The text is provided by The Center for Infection and Immunity.
This is not a new description, but many of the project's supporters may not have seen it.
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The Center for Infection and Immunity said:
The Center for Infection and Immunity, Columbia University Mailman School of Public Health, New York.

“We are actively seeking funds to support comprehensive studies into the role of the bacteria, fungi and viruses in CFS. Research into the human microbiome is an exciting new pathway to advance our understanding of the role that over a trillion microorganisms in our body play in health and in the development of disease. An altered microbiome may cause not only gastrointestinal problems but also immunological and brain dysfunction. As the world’s largest and most advanced academic center in microbe discovery, identification and diagnosis, the Center for Infection & Immunity at Columbia University is optimally positioned to embark upon the challenge to determine how bacteria, fungi, viruses and toxins (and the immune response to them) contribute to Chronic Fatigue Syndrome/Myalgic Encephalomyelitis (ME). Discoveries in these areas may point us toward treatment strategies that reduce vulnerability through exclusion diets, probiotics or drugs.”

http://cii.columbia.edu/blog.aspx?cid=1tOJvW
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Bob

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Sasha

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Bob said:
Mindy Kitei has interviewed Dr Lipkin:

"Candid Conversation with Dr. Ian Lipkin" Mindy Katei interviews Dr Lipkin
May 11, 2014
http://www.cfscentral.com/2014/05/candid-conversation-with-dr-ian-lipkin.html


And Cort Johnson has discussed the interview here:

The Kitei-Lipkin Interview: Missing Pathogens, Psychosomatic Directors and Serving the Chronic Fatigue Syndrome Community
Cort Johnson
May 14, 2014
http://www.cortjohnson.org/blog/201...c-directors-serving-chronic-fatigue-syndrome/
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Both of these are superb - highly recommended.

BTW, I'd be curious to know what all those countries are where people are donating! A little Facebook item there, maybe.

Great story here on FB:

https://www.facebook.com/microbedis...41830.629692043766500/655597361175968/?type=1
 
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Bob

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The Microbe Discovery Project team said:
This is Brooke and Belinda (who has been diagnosed with ME/CFS and fibromyalgia since 2001) - they have recently set a book stall at their local community's annual 'Booktown' event in Australia and raised $400 by selling books for Dr. Ian Lipkin's microbiome study. Thank you very much - what an inspiration you are!

For more ideas how to help this crowdfunding campaign, please visit our website:
http://www.microbediscovery.org/how-to-help/
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Bob

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The Microbe Discovery Project team said:
For those who missed it, Columbia University Mailman School of Public Health published an article about this patient-led crowdfunding campaign to mark May 12th Awareness Day:

More Than a Gut Feeling
Chronic fatigue patients raise funds for microbiome study by Ian Lipkin
http://www.mailman.columbia.edu/news/more-gut-feeling

It starts:
"May 12, 2014—Sarah*, an MIT computer science grad, first got sick while working on a software project for an international NGO. Severe cognitive and gastrointestinal symptoms were the first sign of what would eventually be diagnosed as chronic fatigue syndrome. “I went from running a triathlon to being unable to sit up for more than 15 minutes,” she remembers. “I had a promising career working and volunteering in areas that I was passionate about, and now my life has primarily become about survival.”"

Continue reading:
http://www.mailman.columbia.edu/news/more-gut-feeling
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Bob

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Sasha

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I see Norwegian blogger Jorgen Jelstad has covered the crowdfunding campaign - please give him some traffic (I hope you'll get an auto-translation!) - here's the start:

I've written a lot about the scientist Ian Lipkin involvement in ME / CFS on this blog lately , and it's simply because never before has a more prominent researcher inserted impetus to find the answer to ME - Riddle . Columbia University 's Center for Infection and Immunity are among the world leaders in their field, and Lipkin is more than the greeting with almost all the most important people in the U.S. healthcare system. Having such a person involved fully in ME research is one of the most important event in the field throughout its history .

Read the blog post about what Lipkin says about their preliminary findings in ME / CFS field.

But not Lipkin is immune to the chronic cash shortage in ME research. A private foundation spat into NOK 60 million over three years, but also the money bag approaching being empty . Research costs . In a blog interview Lipkin says that when he applied for funding to continue ME research , he was devastated by the bad review process was on the field , and the professionals who assessed the applications clearly was not competent to do so. To put it like that, Ian Lipkin applied research many times before in connection with other projects for other diseases , and it is hardly normal that he experiences the assessment process in the way he did at the ME field.​

http://debortgjemte.com/2014/05/16/toppforsker-pa-barrikadene-for-me-forskning/
 
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Bob

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The Microbe Discovery Project said:
Over the coming days, we're posting a series of blogs in relation to the gut microbiome study, based partly on an interview with Dr Lipkin.

Part 1 of 9
Background to the Gut Microbiome Study of ME/CFS Patients.

Read the full blog here:
http://www.microbediscovery.org/blog/2014/05/19/dr-ian-lipkin-blog-part-1-of-9/
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Here's an extract from today's blog:

1.png


Read more:
http://www.microbediscovery.org/blog/2014/05/19/dr-ian-lipkin-blog-part-1-of-9/
 
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B

Bob

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The Microbe Discovery Project team said:
This week, we're posting a series of blogs based partly on an interview with Dr Ian Lipkin, in relation to the ME/CFS gut microbiome study.

Part 2 of 9
Why is Dr Lipkin enthusiastic to be involved in ME/CFS Research?

Read the full blog here:
http://www.microbediscovery.org/blog/2014/05/20/dr-ian-lipkin-blog-part-2-of-9/
Click to expand...


Here's an extract from today's blog:
2.png


Read more:
http://www.microbediscovery.org/blog/2014/05/20/dr-ian-lipkin-blog-part-2-of-9/


The Microbe Discovery Project team said:
Past entries:

Part 1 of 9
Background to the Gut Microbiome Study of ME/CFS Patients.
http://www.microbediscovery.org/blog/2014/05/19/dr-ian-lipkin-blog-part-1-of-9/

Part 2 of 9
Why is Dr Lipkin enthusiastic to be involved in ME/CFS Research?
http://www.microbediscovery.org/blog/2014/05/20/dr-ian-lipkin-blog-part-2-of-9/
Click to expand...
 
B

Bob

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Messages
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Location
England (south coast)
The Microbe Discovery Project team said:
This week, we're posting a series of blogs based partly on an interview with Dr Ian Lipkin, in relation to the ME/CFS gut microbiome study.

Part 3 of 9
Microbiome Research – A Piece of the Puzzle for ME/CFS

Read the full blog here:
http://www.microbediscovery.org/blog/2014/05/21/dr-ian-lipkin-blog-part-3-of-9/
Click to expand...



Here's an extract from today's blog:
3.png


Read more:
http://www.microbediscovery.org/blog/2014/05/21/dr-ian-lipkin-blog-part-3-of-9/



The Microbe Discovery Project team said:
Past entries:

Part 1 of 9
Background to the Gut Microbiome Study of ME/CFS Patients.
http://www.microbediscovery.org/blog/2014/05/19/dr-ian-lipkin-blog-part-1-of-9/

Part 2 of 9
Why is Dr Lipkin enthusiastic to be involved in ME/CFS Research?
http://www.microbediscovery.org/blog/2014/05/20/dr-ian-lipkin-blog-part-2-of-9/

Part 3 of 9
Microbiome Research – A Piece of the Puzzle for ME/CFS
http://www.microbediscovery.org/blog/2014/05/21/dr-ian-lipkin-blog-part-3-of-9/
Click to expand...
 
B

Bob

Senior Member
Messages
16,455
Location
England (south coast)
The Microbe Discovery Project team said:
This week, we're posting a series of blogs based partly on an interview with Dr Ian Lipkin, in relation to the ME/CFS gut microbiome study.

Dr Ian Lipkin’s Study of the Gut Microbiome in ME/CFS Patients
Blog
Part 4 of 9
Funding Rejection
http://www.microbediscovery.org/blog/2014/05/22/dr-ian-lipkin-blog-part-4-of-9/
Click to expand...


Here's an extract from today's blog:
4.png


Read more:
http://www.microbediscovery.org/blog/2014/05/22/dr-ian-lipkin-blog-part-4-of-9/
 
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geraldt52

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Well, we keep plugging away, and it's good to see the $, and especially the number of donors, keep rising...albeit slowly. It's frustrating to me to see it going so slowly, but we've got to keep plugging away and hope we reach a tipping point. I want to thank the team for keeping it visible, and working as hard as you obviously have. I think the "blogs" were a great idea. Thank you all, and know that what you're doing is appreciated.
 
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