Dr. Chia

[Diwi9]

I was a patient of Dr. Chia. The first appointment was required in person, after that I was able to work with him over the phone. I started on Equillibrant prior to seeing him and kept me on it. I tested positive for past Coxsackie B4 and Echovirus 30 infections through ARUP Labs. He put me on Valtrex and I had improvements after three weeks of Valtrex. He later prescribed me Tenofovir and I did not respond and ceased taking it. I no longer see Dr. Chia, but have remained a patient of Dr. Chheda. I saw Dr. Bonilla while on Tenofovir and he grilled me for taking it under Dr. Chia's direction.

I switched from Dr. Chia to Dr. Chheda because Dr. Chia was very focussed on anti-virals and Dr. Chheda also prescribes anti-virals plus other wrap around treatments, like SIBO, MCAS, and POTS.

 

[Martin aka paused||M.E.]

I was a patient of Dr. Chia. The first appointment was required in person, after that I was able to work with him over the phone. I started on Equillibrant prior to seeing him and kept me on it. I tested positive for past Coxsackie B4 and Echovirus 30 infections through ARUP Labs. He put me on Valtrex and I had improvements after three weeks of Valtrex. He later prescribed me Tenofovir and I did not respond and ceased taking it. I no longer see Dr. Chia, but have remained a patient of Dr. Chheda. I saw Dr. Bonilla while on Tenofovir and he grilled me for taking it under Dr. Chia's direction.

I switched from Dr. Chia to Dr. Chheda because Dr. Chia was very focussed on anti-virals and Dr. Chheda also prescribes anti-virals plus other wrap around treatments, like SIBO, MCAS, and POTS.

I've never heard of Valtrex against enteroviruses

 

[Diwi9]

I've never heard of Valtrex against enteroviruses

He prescribed Valtrex because of my VZV and EBV titers. The Equilibrant (oxymatrine) was for the enteroviruses.

 

[perrier]

He prescribed Valtrex because of my VZV and EBV titers. The Equilibrant (oxymatrine) was for the enteroviruses.

Dear Diwi, did you get better on any of this??

 

[Hip]

I haven't found any reports on the results of these treatments, and how functional folks become. Do we have an idea?

Dr Chia could not get funding for an oxymatrine study, so conducted a quasi-study, which he detailed in one of his Invest in ME conference presentations. In this quasi-study, he found 30% of coxsackievirus B ME/CFS patients make major improvements on oxymatrine.

On this forum, a poll suggested only 13% get major improvements from oxymatrine. But that discrepancy could be down to the wrong patients trying oxymatrine (as far as I know, it only works for coxsackievirus B ME/CFS).

You see, the oxymatrine apparently isn't terribly effective for women, he even told me that in the one call I had with him.

I had not heard that before. I do know that Dr Chia said if it works for them, women may need to take oxymatrine indefinitely else they relapse. Whereas men can stop taking oxymatrine after 3 to 6 months.

I put lots of oxymatrine info and links in the oxymatrine section of my roadmap.

 

[Diwi9]

Dear Diwi, did you get better on any of this??

Yes, I responded to the Equilibrant and the Valtrex. I stayed on the Valtrex, then switched to Famvir. I later tried Valcyte and had no response to it. I stopped anti-virals about a year ago and have declined. I'm in the process of restarting Valtrex. None of these were miracles, but did help get me out of bed and be more stable.

 

[GlassCannonLife]

Yes, I responded to the Equilibrant and the Valtrex. I stayed on the Valtrex, then switched to Famvir. I later tried Valcyte and had no response to it. I stopped anti-virals about a year ago and have declined. I'm in the process of restarting Valtrex. None of these were miracles, but did help get me out of bed and be more stable.

Ah damn.. Sucks to hear that you declined again!

Are you expecting to have to be on antivirals long-term? What is your current level of function roughly?

 

[Martin aka paused||M.E.]

He prescribed Valtrex because of my VZV and EBV titers. The Equilibrant (oxymatrine) was for the enteroviruses.

I wish I had treatable ongoing infections. Now I'm stuck with Coxsackie B4.

 

[GlassCannonLife]

I wish I had treatable ongoing infections. Now I'm stuck with Coxsackie B4.

At least B4 is a strain that can possibly respond to oxymatrine etc. I believe @Hip 's coxsackie is a variant that doesn't have any potential treatments at all.

 

[Martin aka paused||M.E.]

At least B4 is a strain that can possibly respond to oxymatrine etc. I believe @Hip 's coxsackie is a variant that doesn't have any potential treatments at all.

I thought he has B4 too

 

[GlassCannonLife]

I thought he has B4 too

Oh ok, I think you're right! I had a quick look through his post history. I just remembered him saying that his strain didn't respond to any treatments.. Strange that Diwi responded if they also had B4.? Maybe it's still a roll of the dice

 

[Martin aka paused||M.E.]

Oh ok, I think you're right! I had a quick look through his post history. I just remembered him saying that his strain didn't respond to any treatments.. Strange that Diwi responded if they also had B4.? Maybe it's still a roll of the dice

@Diwi9 didn't respond either... Only to Valtrex

 

[Boba]

People with autoimmune illnesses shouldn’t take oxymatrine right? I ordered some and just realized that this was a mistake. 200$ gone…

 

[Martin aka paused||M.E.]

People with autoimmune illnesses shouldn’t take oxymatrine right? I ordered some and just realized that this was a mistake. 200$ gone…

I'll take the risk

 

[Springbok1988]

I have an appointment with Dr. Chia in August of 2022. The earliest they could get me in is in over a year. They also do in person only visits. I’m going to have to fly out to California. In order to see him, you have to have the ARUP test done, first, then have a doctor refer you to him.

 

[Martin aka paused||M.E.]

I have an appointment with Dr. Chia in August of 2022. The earliest they could get me in is in over a year. They also do in person only visits. I’m going to have to fly out to California. In order to see him, you have to have the ARUP test done, first, then have a doctor refer you to him.

Ok thank you. Then I give a f... on seeing him I'll try to get another.

 

[Hip]

At least B4 is a strain that can possibly respond to oxymatrine etc. I believe @Hip 's coxsackie is a variant that doesn't have any potential treatments at all.

I have coxsackievirus B4.

Oxymatrine works for CVB3 and CVB4, but not for echovirus, according to this article.

I am not sure if oxymatrine works for other CVBs.


Dr Chia found interferon does not work for CVB4. Well, that was interferon alpha; not sure about interferon beta.

 

[Martin aka paused||M.E.]

I have coxsackievirus B4.

Oxymatrine works for CVB3 and CVB4, but not for echovirus, according to this article.

I am not sure if oxymatrine works for other CVBs.


Dr Chia found interferon does not work for CVB4. Well, that was interferon alpha; not sure about interferon beta.

Thanks for your input … interferon is far too expensive for relapsing after some months. I think up to date we have tenofovir and Oxymatrine

 

[Diwi9]

Ah damn.. Sucks to hear that you declined again!

Are you expecting to have to be on antivirals long-term? What is your current level of function roughly?

My current functioning is low...in bed 20-22 hours. Yes, I do expect to be on AV's long-term based on my recurring immunological symptoms. Downturns are normally accompanied with sore throats, cold sores, and swollen lymph nodes.

 

[Martin aka paused||M.E.]

My current functioning is low...in bed 20-22 hours. Yes, I do expect to be on AV's long-term based on my recurring immunological symptoms. Downturns are normally accompanied with sore throats, cold sores, and swollen lymph nodes.

I'm sorry! Hope you get over this soon!!!