BrightCandle
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https://meassociation.org.uk/2021/08/dr-charles-shepherd-stands-down-nice/
A few quotes to give you an idea, seems he commented why GET and CBT were being removed and has been forced out.
This is not good news and I fear this shows the direction the wind is blowing in NICE once again. The fact he has captured the details of the draft before leaving shows he also isn't confident things have changed either.
A few quotes to give you an idea, seems he commented why GET and CBT were being removed and has been forced out.
Following publication of the draft of the new NICE guideline on ME/CFS for Stakeholder consultation in November 2020 it has become increasingly difficult for me to fulfil some key parts of my role at the ME Association (MEA).
Commenting on concerns and disputes relating to CBT and GET in any public forum almost inevitably creates a conflict of interest at NICE.
This is part of a recent exchange (later modified to clarify that the information referred to the November draft of the guideline) on MEA Facebook regarding GET:
In this case NICE received a complaint from someone who is carefully monitoring our social media content. This resulted in a further discussion relating to my continuing conflicts of interest and I have now been ‘stood down’ from the NICE guideline committee.
- CS reply – Is whoever that is nudging you into GET aware that the November 2020 draft of new NICE guideline, due for release in 4 weeks’ time, is no longer recommending GET for ME/CFS? This is because there is no sound research evidence to show that it is effective and there is consistent patient evidence of harmful effects. If GET was a drug doctors would have had to stop using it years ago! Dr CS MEA
- Reply: thanks for that Dr Shepherd, I feel that my daughter’s physio is trying to nudge her towards GET, so it’s really useful to have this clear, succinct evidence-based answer as we can’t always find the words in the moment. And often feel we are not believed even when we do find them!
Before leaving the committee I have recorded my views on some changes to the guideline that have taken place following the Stakeholder consultation on the November draft and I will comment on these when the guideline is published. To do so before August 18th would break NICE guideline committee confidentiality agreements.
This is not good news and I fear this shows the direction the wind is blowing in NICE once again. The fact he has captured the details of the draft before leaving shows he also isn't confident things have changed either.