Dr Bansal consultation

[godlovesatrier]

Oh and I forgot to say that my most recent samples are statistically significant, I started to feel better in June and that correlates with an uptick in the three biomarkers. I felt even better in July, so expect the biomarkers to look better when I get those results.

 

[Judee]

Just read this on Wikipedia on their page for Khellin:
https://en.wikipedia.org/wiki/Khellin

When ammi visnaga extract is taken daily, as a tea or as a pill, calcium oxalate kidney stone formation is inhibited, making it a good treatment for hyperoxaluria (a condition in which there is excessive oxalate excretion in the urine, causing kidney stones). Khellin was thought to slow or prevent calcium oxalate nucleation, preventing stones from forming. However, studies have shown that khellin is not the active ingredient in Ammi Visnaga extract. Upon studying calcium oxalate nucleation, ammi visnaga extract as a whole was shown to prolong nucleation time as well as change stone conformation, while khellin alone had no effect.[8][9]

Of course, research it a bunch.

 

[godlovesatrier]

Really interesting

 

[frogsquid13]

Do you think it’s worth seeing Dr Bansal if I don’t have any virus or immune system symptoms? I have an appt booked with him on the 28th of March. Wondering if it’ll be worth it if he’s primarily an immunologist

 

[godlovesatrier]

Yes he has a variety of treatments. But ME is all trial and error so he does follow that school of thought. Therefore he may give you antivirals as a first attempt. Just because they've shown some efficacy. Same with abilify.

I am personally trying to get the NHS to fulfil my prescription requests but they've tried to block that yesterday. Not sure why. At any rate to save money I don't think I'll follow up with Dr Bansal unless a new drug or treatment becomes available.

I think I've exhausted treatment options at this point. There are tons of options but I don't have POTS or autoimmunity. There are very few treatments for fatigue and brainfog. I've had more luck with supplements and microbiome support :/

 

[frogsquid13]

Yes the microbiome route seems interesting. Do you know if there’s any threads here for beginners, I’m wondering stuff like what’s the best website or company for testing microbiome, how to analyse those results, what best probiotic to use etc.

 

[godlovesatrier]

Not sure myself, worth a search. But you want a microbiome test from biomesight.com to assess your microbiome state. Then check your firmicute level, if it's 30% it's very likely you have a high level of inflammatory bacteria in your gut, which for me anyway has contributed to my ME. I got my firmicutes to 70% at the start of the year and then I had multiple crashes and have yet to get them back to a good place. I think at this point I'd have to take antibiotics for awhile to recover.

 

[Judee]

I’m wondering stuff like what’s the best website or company for testing microbiome, how to analyse those results, what best probiotic to use etc.

Not exactly an easy site to use but I like Ken Lassessen's website https://cfsremission.com/