MeSci
ME/CFS since 1995; activity level 6?
- Messages
- 8,235
- Location
- Cornwall, UK
There is no getting around the fact that what you went through was a horrible experience and it was inexcusable how you were treated.
I still don't understand why that would made you want to turn to online pharmacies. I would be surprised if they would have greater medical knowledge or would have caught this.
I turned to an online pharmacy when a doctor stopped another medication - desmopressin - because she and other doctors seemed to have convinced themselves that it was desmopressin that had caused my first episode of hyponatraemia, notwithstanding the fact that my previous GP had dismissed the episode as a panic attack and left me with no treatment for it. When I was finally well enough to get to my GP, it was found that I was (still) moderately hyponatraemic, which I think was the first time this was recorded.
Docs at that practice, and maybe docs generally, seem obsessed with desmopressin posing a threat of hyponatraemia through excessive fluid retention/overhydration through drinking too much fluid. My meticulously-compiled charts (produced at docs' request and then ignored) showed my fluid intake to be normal and my output to be excessive - I was polyuric. But the doc just stopped the desmopressin with no warning, discussion or explanation.
Reminder - ACE inhibitors are particularly dangerous when one is dehydrated, so this in fact put me at greater risk, although I didn't know it at the time.
I had been taking desmo with no problems for 7 years when I had my first hyponatraemic episode, but docs decided desmo was to blame rather than the ACE inhibitor I had only started shortly before - going onto the top dose just 10 days before the episode.
Desmopressin had transformed my life for the better. At last I could go shopping without multiple trips to disgusting public toilets. I could use buses again. I could sleep without having to get up multiple times to urinate. And I wasn't constantly thirsty.
So after a lot of research, and with trepidation, I tried what appeared to be a reputable online pharmacy - and have never looked back.
I do not look for medical knowledge at a pharmacy of any kind. I use scientific papers and authoritative sites, including government sites.