silky
a gentle soul here to learn
- Messages
- 95
- Location
- Orange County, California
Serious question!
I have searched high and low and never once found a pure ME story where the person took Rituximab in the US and went into remission. I have seen a couple who had other autoimmune conditions, but that's it.
There's not one on this board, PatientsLikeMe, Healthrising, Reddit, DailyStrength, ProHealth or any American blogs. And there are plenty who tried it. The best cases I've seen are people who got slightly better for a very short period of time which is no different than say Valcyte.
And don't say the good responders are out living their lives! People who do well on LDN for example sing from the mountains about it, so why wouldn't the same be true for Rituximab?
I know OMI says 2 out of 3 of their patients respond. But honestly has anyone ever met these people?
Perhaps the Norwegian patients are truly special
I have searched high and low and never once found a pure ME story where the person took Rituximab in the US and went into remission. I have seen a couple who had other autoimmune conditions, but that's it.
There's not one on this board, PatientsLikeMe, Healthrising, Reddit, DailyStrength, ProHealth or any American blogs. And there are plenty who tried it. The best cases I've seen are people who got slightly better for a very short period of time which is no different than say Valcyte.
And don't say the good responders are out living their lives! People who do well on LDN for example sing from the mountains about it, so why wouldn't the same be true for Rituximab?
I know OMI says 2 out of 3 of their patients respond. But honestly has anyone ever met these people?
Perhaps the Norwegian patients are truly special