Documentary: Undercover in German Lyme Clinics

[Thinktank]

This link works for you? My browser addin shows "This video can not be viewed from your location"

Yes it does. I guess the video is only viewable within the Netherlands.

 

[Olena]

I'm glad somebody finally exposed this scam. Too late for me as I have already been damaged by wrong diagnosis by KDM and treatment with long term antibiotics too.
It was suspicious that from certain point basically everybody tested positive on these tests. I remember that when I was at clinic I talked to couple where healthy spouse got tested and he was positive too.

I visited BCA in 2012 and my first LTT was negative for everything. When I asked if they treated people with antibiotics who had negative LTT like me doctor said yes and they would be willing to "treat me". I escaped there but unfortunatelly KDM went into his "CFS=LYME" stage and he destroyed me with antibiotics later and didn't care for side effects and toxicity.
After I got permanently much more sick with many new symptomes (including ruined gut), LTT was sudenlly very high positive (I was mostly bedbound in the meantime), so I got even more antibiotics and got even more damaged. And again after that LTT was even higher... I should have trusted myself from the beggining but antibiotics caused such neurocognitive impairment (which was immediately dissmised by KDM as "herx") which made me unable to think, reasearch or make any decision. It was huge mistake to trust KDM. Later I saw how he is obsessed with lyme and how he tried to fit everything to his "lyme theory" and I'm seriously worried that some of his patients will suffer like me in agony for the rest of their lives or die because of his mistreatment.

Now KDM does not treat antibiotics, but calls the diagnosis " postlyme".
I visited Himmunitas in 2016 -2018, but I was always prescribed treatment only for the intestines. I do not benefit from the treatment. This is the inaction of a doctor, my condition worsened without treatment.

 

[Aubry]

Now KDM does not treat antibiotics, but calls the diagnosis " postlyme".
I visited Himmunitas in 2016 -2018, but I was always prescribed treatment only for the intestines. I do not benefit from the treatment. This is the inaction of a doctor, my condition worsened without treatment.

How do you mean: worsened without treatment? You got SIBO treatment probably? But no Lyme specific treatment you mean?

 

[Olena]

How do you mean: worsened without treatment? You got SIBO treatment probably? But no Lyme specific treatment you mean?

I only got SIBO, and that's not enough.
I do not have autoimmune dysfunction and my disease started after a holiday in the Seychelles. Perhaps, the infection is very exotic and seronegative.
Proved only Lyme (Arminlabs), but there are many symptoms of brucellosis and worms. In such cases, ivermectin treatment is also used as a starting treatment. I very much asked the doctor for treatment, he is completely indifferent.

 

[Aubry]

I know what you mean. I am in the same boat... I did 4 years of Meirleir treatment by now (first year for suspected Lyme, last 3 years for SIBO/gut). I had periods I was really better during SIBO treatment but now I am again worse... DML proposed to try IVIG but it is so expensive...

 

[Olena]

I know what you mean. I am in the same boat... I did 4 years of Meirleir treatment by now (first year for suspected Lyme, last 3 years for SIBO/gut). I had periods I was really better during SIBO treatment but now I am again worse... DML proposed to try IVIG but it is so expensive...

At the beginning of the disease (2013), I took alpha globulin.

This is a very short improvement, only for the period of injections. An autoimmune reaction is also possible.
I have been taking Gcmaf for 4 years (2014-2018), now it's colostrum from Japan. I'm very much disappointed that KDM knows where to buy a good GcMaf, but does not give information.
Very upset that there was no cure for the worms. For me, the most effective treatment is RIFE and apitherapy. It sounds crazy, but I would die on the inaction of Dr. Kenny de Merleir, if I did not use bees and bioresonance. So, the problem is in the infection, but I just take probiotics and cry crazy money for tests !?

 

[Sushi]

I'm very much disappointed that KDM knows where to buy a good GcMaf, but does not give information.

I missed that--what did he say about knowing where to get "good" GcMAF?

 

[Olena]

I missed that--what did he say about knowing where to get "good" GcMAF?

After the First Immune conferences, which took place in Moscow, they opened production. Dr. KDM informed me at last visit in July 2018 that it is possible to purchase a good GcMaf in Moscow, better than Japanese.
But he refused to give the name of the seller. I am very upset (
KDM knows perfectly well that I always need GCMAF (

 

[perrier]

After the First Immune conferences, which took place in Moscow, they opened production. Dr. KDM informed me at last visit in July 2018 that it is possible to purchase a good GcMaf in Moscow, better than Japanese.
But he refused to give the name of the seller. I am very upset (
KDM knows perfectly well that I always need GCMAF (

I suspect the Japanese product is more rigorously tested than the Russian one, by a long shot. I suspect KDM knows this. (Then there is also the political/war invasion situation too. I wouldn't give Russia my cash. A doctor offered to sell me peptides and as they were form Russia I declined. They seized Crimea, invaded Donbas, and now are blocking ships from delivering goods to Mariupol, probably trying to seize full access to the sea of Azov. I know that politics are not for this list, but when medicines we need come from nefarious regimes, I guess one needs to weigh things, at least I do. Just my humble opinion.)

 

[Sushi]

Dr. KDM informed me at last visit in July 2018 that it is possible to purchase a good GcMaf in Moscow, better than Japanese.
But he refused to give the name of the seller. I am very upset

I'd guess that this is because of the legal issues surrounding GcMAF and that he can't be said to helping patients get it because of this.

 

[Sundancer]

I'd guess that this is because of the legal issues surrounding GcMAF and that he can't be said to helping patients get it because of this.

Yes, I agree with that. He has been standing before a judge for things like that.

 

[Markus83]

but when medicines we need come from nefarious regimes, I guess one needs to weigh things, at least I do.

Then you could take barely any medicines, because nearly all countries, particularly the US, have done horrible things in the last decades (for example slaughtering at least 1 million people in iraq because of lies). I think the normal people, which we all belong to, should not let them stir up against eacht other. Its obvious that some people want war. Don't be so foolish to follow them. Sorry, but this has to be said even if its OT.

 

[Olena]

. (Then there is also the political/war invasion situation too. I wouldn't give Russia my cash. A doctor offered to sell me peptides and as they were form Russia I declined. They seized Crimea, invaded Donbas, and now are blocking ships from delivering goods to Mariupol, probably trying to seize full access to the sea of Azov. I know that politics are not for this list, but when medicines we need come from nefarious regimes, I guess one needs to weigh things, at least I do. Just my humble opinion.)

I agree that the politicians of Russia are doing terrible things.
But I hope that science is free from politics.
In Russia, they have always produced medicines from donor blood, this is allowed. I think they fully applied First Immune technology.
Dear @Sushi I personally do not need a prescription from KDM to buy GcMaf, I asked him just the name of the manufacturer in Moscow. Only name (

 

[Sushi]

Dear @Sushi I personally do not need a prescription from KDM to buy GcMaf, I asked him just the name of the manufacturer in Moscow. Only name

I'd still guess that he is being extra cautious due to his recent legal issues.

 

[Vitalic]

I'm always hesitant to draw definitive and far-reaching conclusions from my own experiences (i.e. the entire enterprise is a scam), but I went through Lyme and co-infections treatment with KDM after a "positive" LTT and it only made me far worse. Thankfully my gut has just about recovered and I wasn't left damaged beyond repair (although I suspect there was some irreversible immunological damage: to take one example, after a recent surgery I was hit with a re-activated virus that put me in hospital for a month including end stage renal failure due to a severe adverse reaction to Acyclovir.)

The only thing that has ever helped me, and allowed me to get back some semblance of normality, is having TMJ surgery and accompanying treatment to correct my joint function, it seems my problems were mostly downstream of a core physiological dysfunction and this entire ME/Lyme diagnosis has been a dead end that squandered 8 years of my life. It is only by sheer chance I discovered what my underlying pathology was. I have a long way to go but at least there is a light at the end of the tunnel now. The very best of luck to everyone still in this fight.

 

[Markus83]

@Vitalic: Which lab did your LTT? How long and with which antibiotics have you been treated by KDM?

 

[Lala]

Was this video here?

https://on-lyme.org/en/sufferers/ly...s-after-a-media-attack-on-german-lyme-clinics

 

[Lala]

 

[pibee]

Lyme specialists in Europe knows about the rate of false positives with the Elispott (which is unfortunately still the only relatively ''good'' test we have). KDM himself told me about that study or some similar that showed a high % of positive tests among healthy people. That's probably why him (and maybe others) specialists are more cautious those last years to treat patients with positive results (I had a 5-3-1 score and he only treats me for post lyme disease without giving me any abx for Lyme, focusing on my gut). Before treating a patient with Lyme disease, they take into account many other blood tests measures (low CD57) and clinical symptoms as well.

Several former KDM patients here got worse because he immediately put them on abx for Lyme. I don't see a lot of patients (diagnosed with CFS) getting treatment for active Lyme recently. I don't know if that's an improvement or not, but he clearly changed the way he looked at Lyme in his patients.

Overall, I think it's very bad to try to diminish how bad Lyme disease is and how frequent it is, even if I can agree with a lot of people saying that both diagnosis tests and treatments protocols are REALLY bad (which should be a reason to try to help recognize this disease and get funds for research, not to bash Lyme sufferers).

3 yrs later update: Unfortunately I hear KDM is again inn his lyme phase where everyoen has it, he is using some his new test Phage PCR and again people who never improved from antibiotics, and in fact never tested positive even on LTT, and even have alternative diagnosis (like my friend has biopsy proven Sjogrens and small fiber neuropathy) again have "Lyme" now

 

[pibee]

I have a friend who was diagnosed with ALS.
Unforutnately in her country it was impossible to start antibiotics for lyme or do proper test , she lost 1+ year, until she managed to travel to doctor who did Westernblot and PCR, she was clear positive on both.
Did antibitocis but already very very disabled from ALS (not talking or moving arms well), antibiotics improved her 10-15%, her ALS stopped and 4 years later she is still at same level as then.
If it was real ALS she'd be dead already.

First she did single 1 antiibotic daily and that did not stop progression but when she got new 'LLMD' and did 4 antibiotics daily, ... her progression was stopped and 10% improved, as I mention.

but this is rare, i guess up to 10% of ALS is 'Lyme'