Guess what... I test positive now for 3 2 1 ... BORRELIA MIYAMOTOI
Why would I treat results based on invalid tests? I have sjogren and small fiber neuropathy. I never had Lyme.. its nonsense this test.
Or another possibility is simply you may have it, but it is not causing your symptoms. Many people infected with Lyme are asymptomatic, just as with COVID-19 and most form of infections, it's pretty amazing how many different pathogens we come in contact with during our lifetime. Borrelia Miyamotoi apparently doesn't even cause the erythema migrans sign and we don't know if this strain causes chronic Lyme disease.
its strange how some people keep going to KDM and other Lyme quacks for decade and then complain they keep diagnosing them with lyme.
I guess it's called "free market" haha
If you are using the term 'free market' ironically then your criticism makes more sense. People go to see doctors like KDM because so-called non- 'quacks' prescribe absolutely nothing and no tests for an illness that is entirely physical, therefore treating ME either as a magical entitiy that doesn't follow normal common sense rules - i.e. 'test for pathogens, treat if found and symptoms agree with chronic infection hypothesis'- or as something that can be ignored. So in my definition those doctors you are constrasting with KDM are either quacks themselves, in that they believe in magic (it's just they use their magical, non-scientific beliefs to justify not treating or testing the patient rather than treating them), or they are simply unethical and therefore bad doctors because they don't want to help ME patients get better. Now, if you are constrasting doctors like KDM with doctors who take a more rigorous. science-based approach to testing and treating ME, then it would be great if you could supply the forum with a list of these doctors. If you can do this then there truly is a 'free market' (i.e. where there is competition among doctors to provide quality medical services). Also, even if there is such a thing in the US, then that is not of much help to most of KDM's patients, as distance and regulations mean that they can only access the EU market, not the US one.
i did not contrast anyone with KDM, .. if someone kept going to shrink or neurologist who keeps telling them they have conversion disorder, deep trauma, wrong beliefs, for years, only to expect something different, i'd have same comment i dont understand it.
it's not like KDM vs the mentioned is only option for now, maybe it was years ago but now there is so mch new science.
i don't really care what KDM predicted as right becasue he makes so many claims over and over again that of course part of it has to be true. Problem is he was overdosing people with antibiotics based on no positive lyme test even that LTT test he somehow ignores if negative... and all the claims of finding cures etc.
Doesnt' take too long to notice an issue.
and as I see KDM is not really affiliated with OMF, for a reason it seems
Mattie I am so sorry to hear about your experience.
But kudos for posting this video! I would argue that 95 % of all ME/CFS patients have fallen for sham tests / treatments during their illness (I know I have), and it is incredibly brave of you to come forward and share your experience.
The documentary has caused a lot of debate in Denmark, where a lot of people still swear by the lyme treatment they have received, even after it has been uncovered to be fraudulent.
The documentary has also been one of the reasons why I have always been skeptic of ME/CFS doctors who claim they can test and find something wrong in ME/CFS patients like Dr. Meirleir.
Yes ILADS is quackery. Most of 'Lyme' people have autoimmune diseases.
Chronic Lyme exists but it's vastly overdiagnosed..thus most don't improve from antibiotics.