I am the tallest with the widest hips. as well as EDS it is worth googling Marfans. i just had a bone scan as they say there is more susceptibility to brittle bones, mine are a little worse than they should be for my age but could be worse
Coxy, please let us know what Judy Whittemore tells you in the way of more information.
Also, I am wondering if anyone has an odd gait - "pigeon toed" or feet pointed outward? I guess it could be a result of scoliosis, but my daughter has one foot turned at about a 45 degree angle when she walks. I have the same problem but with both feet and the angle is not as great as hers.
And, I wanted to mention that a man I know was dx with CFS and within six months, he developed eye cancer, which I would think is a pretty rare cancer. Since eye tissue is a type of connective tissue, I believe, it would make sense that the XMRV or MLV attacked the connective tissue or made it more susceptible to cancer. But note the connective tissue nexus, again.