Do you have scoliosis, double jointed, MVPS?Odd overlap- Connective Tissue Disorders?

[Allyson]

scoliosis is definiety related to EDS often and yes the symptom overlap is amazing -
gene testing for EDS - all types - is not far away I am told by my geneticist

Ally

 

[Allyson]

I am the tallest with the widest hips. as well as EDS it is worth googling Marfans. i just had a bone scan as they say there is more susceptibility to brittle bones, mine are a little worse than they should be for my age but could be worse

yes Marfans is related to EDS - my grandfather had Marfan's habitus

Ally

 

[Allyson]

Coxy, please let us know what Judy Whittemore tells you in the way of more information.

Also, I am wondering if anyone has an odd gait - "pigeon toed" or feet pointed outward? I guess it could be a result of scoliosis, but my daughter has one foot turned at about a 45 degree angle when she walks. I have the same problem but with both feet and the angle is not as great as hers.

And, I wanted to mention that a man I know was dx with CFS and within six months, he developed eye cancer, which I would think is a pretty rare cancer. Since eye tissue is a type of connective tissue, I believe, it would make sense that the XMRV or MLV attacked the connective tissue or made it more susceptible to cancer. But note the connective tissue nexus, again.

Thank you for your thoughts.

flat feet are common in EDS - does that cause pigeion toes?

Ally

 

[Allyson]

I read recently that MVPS - mitral valve prolapse syndrome - is no thought to be synonymous with EDS

MVPs are very common In EDS


Ally