Lisa....I dont know, didnt do anything out of the ordinary!
Usually in the mornings my brain takes an hour or two to warm up per say, but yesterday I just never broke through that and felt like I just woke up all day
Yeah, I have a lot of days that I'm not sure what happened to me too. Things can be going fine, and then they will feel off.
I really think those blips are almost always environmentally triggered rather than just random "flares." My system seems to hold up to stressful situations pretty well now. And I don't think it has any problem dealing with new exposures to pathogens either. (If anything, it's too good at that. I still haven't gotten a cold.)
I think it's that my body is still hypersensitive to all kinds of environmental stimuli. But figuring out what those things are is a puzzle.
That's especially the case since if I have one environmental stressor (e.g. mild mold exposure OR alcohol), it may be no big deal. But if I have two (mild mold exposure + alcohol), all hell may break loose.
I spend a lot of time figuring out what those triggers might be, so I can either eliminate or manage them. I don't want to live my whole life without ever having a drink again. But I want to do it under the right conditions, so I don't get punished as a result.
The experience I had recently drinking tap water (made into tea at a restaurant) and getting a CFS flare from it (apparently as a result of cyanobacteria contamination) was huge for me. I now think that I may be affected to a smaller extent by a fair percentage of tap water, at least in certain places, and that this has driven me down in general. Drinking bottled water all the time is an easy enough change to make, rather than playing Russian roulette with the public water supply.
My food sensitivities went away with mold avoidance, but I've been experimenting with eliminating wheat. If that gives my system more resilience against mold exposures, that would give me a lot more flexibility.
If I push detox, everything has more of an effect on me.
Yesterday I took some oregano oil, which seems too wimpy to have much of an effect. I woke up feeling like crap today. So I guess that the idea that if I'm well enough on the surface, for long enough, all the pathogens will go away on their own doesn't hold up.
If I can get to the Chicago Botanic Garden (the place nearby where the air is best) for a while each day, my system has much more resilience against everything. It's not just avoiding bad air, it's getting super-good air on occasion, that can make a real difference.
The thing I don't like about the word "Remission" is that it makes it sound so EASY. My own health gains have not been easy at all. I've had to think about and manage what's going on all the time, without ever letting up. It's gotten somewhat less difficult as my system has gotten stronger, but I don't think it ever will be easy.
It's discouraging and a little scary to feel worse on some days. But I'm encouraged by the fact that on average, the good days keep getting better and that the percentage of good days keeps getting higher. And even the worst days now are much better than the best ones were, back when I was really sick.
Being careful with big changes or stressors seems key. I think our bodies can recover from little stressors. But big stressors (especially of the sort that our ancestors didn't have to deal with) may be another thing. It's hard to imagine myself getting another vaccine for any reason. And of course, moving to a bad building never will be something I'll be able to do.