Hey thanks for that info Boule de feu...Yea Im a big fan of Dr Hyde and his research...I think he describes ME as accurately as you can get without being an actual patient
Truth is ME is pretty simple to diagnose...its quite unmistakable from any other disease and good physicians can diagnose ME within a 15 minute conversation, before
labs are even done!
Also too, one note about remission...some patients sometimes can get remission confused with a period in which the immune system is extremely heightened, generally
around year 10 of the illness as there are phases of the disease process. During this phase patients have a sense of well being because the immune system is effectively
handling all the virus and toxins but this phase which usually lasts roughly 2 years is followed by the worst part of the illness, in which the immune system completely
collapses Generally remission without tx intervention is almost impossible at that point.
I will be celebrating my fifth year of being house/bedbound in November and I am really worried how bad I will get. I feel I am very fragile right now and anything could make me tip over. I remember someone saying that if you don't recover within 3 years of the illness, you will never recover. I hope they were wrong. My GP also believes that I will not make it back to the way I was.
If you say that the worse is to come, I wonder how I will be able to survive and endure more of this.
This is why sharing your story is so crucial for people like me. It is one of hope and new possibilities!