My contact was unhappy with lots of aspects of their dealings with Dr. Hyde. I will see try to see what they are happy for me to say. Just to repeat again as I said on the other thread, it wasn't me - I'm not able to travel to Canada or anywhere e.g. my granny died this week in my city and I didn't go to any of the events.As I stated on the other thread, it seems your friend was disappointed with their spect result. Did it show CNS dysfunction? Did Hyde confirm a diagnosis of ME?
And for someone who values scientific evidence, you are placing a lot of stock in a hearsay report of ONE patient.
As I said before, I don't need to depend just on what this person said: it's main value has been to prompt me to look again at some of the things he says. And a lot of questions remain unanswered. Published data would be a huge help. He has had been in the field since I think it is 1984. He has been closely associated with the Nightinagle Research Foundation for the past 20 odd years - it's almost sole purpose in the last 15 (?) years seems to be his activities. He has had plenty of time to publish data in peer-reviewed publications. That as I say is much more likely not just to convince me but more influential people in the medical field like the people who pay for tests and treatments (government-type agencies (NHS, NICE, etc.), insurance companies, etc).
Some people (e.g. those who have used him for insurance company cases) may not like him challenged. But so much of the ME vs CFS debate seems to revolve about what he says.