Glad you can try it, Forebearance.
After the horrible 36-hour-can't-breathe-out-of-my-nose-someone-put-me-out-of-my-misery episode, my doctor recommended just cutting way back on the amphoB, not using a whole ampoule. I was scared (and waited until my kids are back in school), but did two good sniffs on each side the other day- it was tolerable! Doing a second dose today. So I have hope that I might be able to get through this, albeit slowly.
Looking forward to any Brewer updates next time you go in, iFish.
How is everyone else doing?
Skiii,
Interesting you should ask me this since I just saw him yesterday. The one (and only) good thing about having several ill family members is that we can stagger our visits. So instead of seeing him once every six months I can tag along and see him once every two months.
It seems things are clarifying more as he goes along. First, good news for people on nystantin. It is becoming more and more apparent that nystantin is effective as he has had many nystanton patients suffering from significant die off reactions. He now thinks that some of the patients that quit amphoB because they could not tolerate it were not reacting to the medication, but just couldn't tolerate the die off.
The treatment is clearly a long term proposition. Some patients go well beyond six months before starting to improve. For some the improvement is very up and down. For others it is a very slow but steady improvement. Patients are not able to get off the medications without declining. He had a patient that did the mycotoxin test five times. Every time this patient quit the medications the mycotoxin levels rose.
He does not feel it is necessary for patients to ever do the Chelating Px and AmphoB more than once per day, but if they have to go to a lower dose they need to work up to once per day on each. Additional dosing does not seem to help and he feels the sinuses need time to rebound from treatment.
He feel treatment with mupirocin is helpful for some patients but the maximum benefit is reached in a few weeks. He sees no need for more than four weeks treatment.
So the treatment is now pretty standard. Chelating Px once per day and Ampho B once per day. Cut back if necessary. Go to Nystantin if necessary. Treat for a month with mupirocin if resistant staph is suspected. Once you are on the daily treatment, stay with it indefinitely. Hopefully eventually there would be a reduced dosage or even a complete remission without any medication but only time will tell.
Brewer plans to publish his data, hopefully by the end of the year. He will give a presentation at the ILADS annual meeting in October. He gave a presentation last year and if you buy from ILADS the conference dvd you can see it. I think they will probably offer a dvd again this year.
Brewer will also present at the American Academy of Anti-Aging Medicine annual meeting in December.
