I think it is totally possible to eventually work through issues of grief, sadness, depression over all the losses with major illness, and emerge into a new, serene normal. It has been true for me.
I come on the forums for several reasons.
Usually, I am flat on my back resting, and I have time to read up on advocacy, research, treatment protocols, history, etc. It is life-changing to find another piece of my puzzle and find some relief for symptoms. I see no doctors right now, use no prescription meds. It is a lovely ah-ha moment to learn new dimensions of the illness, or why I have relapsed, and what I need to do to continue to function, especially in the area of work. I rather like having a roof over my head.
The rest of the time - I will be totally honest here - I come on here to LAUGH. You guys are hysterical. There are pretty good humorous threads to follow and contribute to, and I make sure I get some good long belly laughs while online on these forums. I routinely got onto chat for over a year just to be totally nonsensically silly for a few hours. GracieJ with the Dory brain - or is that Dottie??
Anyone who thinks all people who have this are automatically depressed, I will give them part of that - all of us go through stages of denial, acceptance - in short, grieving. Each will handle it differently. I know I was in prolonged grief for years, and that was a problem. But it was not permanent, and it was not a part of the disease. It was a reaction to the disease. To insist that we are in denial is just silly.
It is the upbeat feeling in these forums that keeps me going from day to day. It feeds me emotionally in healthy ways. I am intellectually challenged and stimulated, an amusing feat by itself with brain fog. I connect with other people. I feel a wholeness in my life that is vital and wonderful.
I come on the forums for several reasons.
Usually, I am flat on my back resting, and I have time to read up on advocacy, research, treatment protocols, history, etc. It is life-changing to find another piece of my puzzle and find some relief for symptoms. I see no doctors right now, use no prescription meds. It is a lovely ah-ha moment to learn new dimensions of the illness, or why I have relapsed, and what I need to do to continue to function, especially in the area of work. I rather like having a roof over my head.
The rest of the time - I will be totally honest here - I come on here to LAUGH. You guys are hysterical. There are pretty good humorous threads to follow and contribute to, and I make sure I get some good long belly laughs while online on these forums. I routinely got onto chat for over a year just to be totally nonsensically silly for a few hours. GracieJ with the Dory brain - or is that Dottie??
Anyone who thinks all people who have this are automatically depressed, I will give them part of that - all of us go through stages of denial, acceptance - in short, grieving. Each will handle it differently. I know I was in prolonged grief for years, and that was a problem. But it was not permanent, and it was not a part of the disease. It was a reaction to the disease. To insist that we are in denial is just silly.
It is the upbeat feeling in these forums that keeps me going from day to day. It feeds me emotionally in healthy ways. I am intellectually challenged and stimulated, an amusing feat by itself with brain fog. I connect with other people. I feel a wholeness in my life that is vital and wonderful.
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