Just to throw in my views on this - feel free to disagree.
I was part of the XMRV protest outside the department of health in November 2010 (London UK) - to highlight the blood donation ban. We had around 50 protesters handing out leaflets etc and holding banners up. We got zero press coverage on the day and a couple of local TV stations did a 1 minute or so individual interview. They were not allowed to mention XMRV.
The only way to make them stand up and listen is to cause as many problems as possible. The media will come if this happens. We were WAY to polite and happy to stand around being nice. We should have put beds and wheelchairs across the road , stopped the traffic on which is a main road in London - stopped being so damn nice about this. It wouldn't have taken long for the Police to arrive, followed by the press. How would it have looked if the police were seen dragging off people in wheelchairs etc etc - the press would have loved it!
I was part of the XMRV protest outside the department of health in November 2010 (London UK) - to highlight the blood donation ban. We had around 50 protesters handing out leaflets etc and holding banners up. We got zero press coverage on the day and a couple of local TV stations did a 1 minute or so individual interview. They were not allowed to mention XMRV.
The only way to make them stand up and listen is to cause as many problems as possible. The media will come if this happens. We were WAY to polite and happy to stand around being nice. We should have put beds and wheelchairs across the road , stopped the traffic on which is a main road in London - stopped being so damn nice about this. It wouldn't have taken long for the Police to arrive, followed by the press. How would it have looked if the police were seen dragging off people in wheelchairs etc etc - the press would have loved it!
It's time to be stark, and cause commotion. MLK Jr. and crew decided to proceed with the "I HAVE A DREAM" speech as we all know it today, even after JFK and administration decided to sign the bill. You know WHY? He, all his people, and white brothers around the country wanted to make a point that they were not the "communistic army" some white people and media pronounced them to be. This took years of demonstrations in the south along with people being martyrs before the speech was even able to be proposed.
Stop letting so called "higher ups" deter you from what is rightfully yours. The only way we will achieve this is if we stand for what we believe is right,in unity, and let millions of other know we are validated and need good, biological, scientific work done. Because, most people don't know what CFIDS is(we need a F#$%&% new name too). And i'll tell you, i didn't even know i had CFIDS until i was a year and a half deep with it, flourishing over my head, for what now i know to be more than, sadly, just a disease i have to cope with. So how do we expect others to learn about us, when they only hear the media, if they even hear that psychotic noise!?!
The media will come, the people will catch on, but first we must be united as one entity. I'll leave you with a quote
"I believe that unarmed truth and unconditional love will have the final word in reality. That is why right, temporarily defeated, is stronger than evil triumphant."
Martin Luther King Jr.