Cyclo part A recovery scale ?

Frenchguy

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Hi evereyone,

Does anyone know the scale Fluge and Mella used to monitoring improvement in cyclo study ?

Anecdotal reports say that people can walk 13000 steps per day after 6 months and function to 35%.
When I see that, I am intrigued,

David
 
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pibee

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Anecdotal reports say that people can walk 13000 steps per day after 6 months and function to 35%.
Do you mean that one patient they mentioned who walked 200 steps before Cyclo, and 13,000 after?

And how is walking 13,000 steps = 35% of functioning?
13,000 steps should be = healthy.

Or i misunderstood you
 

pibee

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All I know the results are "better than for Rituximab " (Phase II), which would mean 65% responded at least. Which is very promissing.
 

Frenchguy

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If they say that based on phase 2, yes, but the phase 3 is negative.
I like the fact that they measured the average step per day. Maybe if they had measured that in Ritux phase 2, the results would be different.

I don't say that for you, but for people who currently think that rituximab is an option for true ME.
 

pibee

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yah, comparing it to negative Phase III and saying how it's 'even better' would be a bit silly so I doubt they meant Phase III :)