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Moderation Resource Albuquerque
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I have hEDS and recently started this experimental protocol. It is not a cure but an ongoing treatment using 8 supplements. There is a Facebook group called Ehlers Danlos Syndrome and the Cusack Protocol. They recommend starting each supplement separately with a week in between so I don’t have them all on board yet.
I have seen some posts here on this protocol in relation to CCI but I’d like to hear from anyone who has tried it for any reason. So far I have noticed more stability in my knees and SI joints. Since at this point we are at the stage of “let’s try anything that might give a 10% improvement,” this protocol seems low risk though it is not cheap as an ongoing treatment—but then neither is physiotherapy and even though a good physiotherapist can get me out of pain, it only lasts about a day before I sublux again.
Here is a list of the supplements:
Components
I have seen some posts here on this protocol in relation to CCI but I’d like to hear from anyone who has tried it for any reason. So far I have noticed more stability in my knees and SI joints. Since at this point we are at the stage of “let’s try anything that might give a 10% improvement,” this protocol seems low risk though it is not cheap as an ongoing treatment—but then neither is physiotherapy and even though a good physiotherapist can get me out of pain, it only lasts about a day before I sublux again.
Here is a list of the supplements:
Componentsedit source]
- Polysaccharides:
- Lactobacillus rhamnosus GG (L-GG) - a probiotic (10-15 billion cfu)
- Pyrroloquinoline Quinone (PQQ)
- L-arginine
- D-Ribose
- Lion's mane (hericium erinaceus, a type of mushroom)
- Diatomaceous earth (food grade DE) - a powdered fossilized algae)
- Glucosamine chondroitin[3]
Components