Cured their ME/CFS, and went on to live their lives (35 Stories)

[ljimbo423]

Hi Jim,

As someone who is heading down a similar path myself, may I ask what you treatments are/were that led to your improvement?

I started with 2 courses of the antibiotic Rifaximin to lower the amount of bacterial overgrowth in my small intestine. Then slowly increased the small amount of antibacterial herbs I was taking and still am, to a much bigger dose.

At the same time I slowly stopped my intake of any sugar from junk food. I also lowered the amount of starch I was eating to a very low level, the lower the better. Starch seems to be the worse food for sibo, dysbiosis or candida by far.

Adding in supplements that support mitochondrial function has been very, very helpful for energy and reducing PEM. This has been a slow process for me. So don't be disappointed if you don't feel dramatically better in just a couple of months.

Although I know of a few people that have. We are each unique in how fast or slow recovery takes place.

 

[Judee]

I suspect a few of these people didn't have ME/CFS.

I find it demoralizing when someone oversimplifies this disease and suggests that something like lightening process is a cure

so an individualized medicine approach with a treatment plan that evolves over time offers the best chance of success, not some whiz bang "do as I do" solution. And, it's one thing to be 36, but harder the older we are...

Not to mention the fact that some of us have had this for a long time. Going on 40+ years now for me. I'm trying to find a way out of it and am making minute gains but that many years with no remissions makes me think it's going to take the rest of my life time to get where some of these people say they are now. If that's even possible.

Unfortunately, there are no easy-peasy answers when the body is so complex i.e. multi-systemed/multi-layered as they are.

I know it won't be popular, but I have no doubt that many people were "cured" by the Lightning Process, or by GET, or by CBT, or by Gupta...it seeming to me that their reports are as valid as anyone else's. But what exactly were they "cured" of?

Exactly.

 

[MonkeyMan]

Have you seen the case of Mikhaila peterson?

Lyme disease. C DIFF Disease. Rheumatoid arthritis since 2 (severe) . Severe depression at 11 (multiple antidepressants). Two surgeries by 17. By 19 Chronic Fatigue. MCAS like disease (wasn't diagnosed). She took over 20 medications to function semi regularly.

She changed her diet to a pure carnivore diet. Only fresh beef and salt. She entered in remission of every disease she had sfter months. Without pills.

Clearly she found his problem. Terrible autoinmune problems from the diet. After she took the problematic foods, she didn't heal right away. Took her months. But after 5 to 6. She went in complete remission and she is now healthier than most "healthy" people.

The "pure carnivore diet" obviously seems very risky in the long run, but since I feel tired after every meal, I'm thinking of experimenting just a bit.

I would welcome hearing the experiences of anyone who's tried it.

 

[Shen]

The "pure carnivore diet" obviously seems very risky in the long run, but since I feel tired after every meal, I'm thinking of experimenting just a bit.

I would welcome hearing the experiences of anyone who's tried it.

although for mikhaila it worked, I should warn you that it isn't for everybody, I would strongly recommend a full GI-MAP + an acid test, to determine what exactly is your gut problem, so you can have better options for dealing with the gut.

Although, if you don't have anything to lose, The carnivore diet has been pretty successful on terribly ill people, but only after a month or so, (and expect a herx reaction at first)

 

[Learner1]

The carnivore diet has been pretty successful on terribly ill people, but only after a month or so, (and expect a herx reaction at first)

The carnivore diet is rather short on folate, vitamin C, magnesium, potassium, etc. Unless one is supplementing, it could prove rather dangerous and lead to cancer, immune dysfunction, collagen dysfunction, neurological dysfunction, etc.

Any radical diet should be carefully supervised by a doctor or dietician, with regular lab testing.

Glad Mikhaila got lucky...

 

[Shen]

The carnivore diet is rather short on folate, vitamin C, magnesium, potassium, etc. Unless one is supplementing, it could prove rather dangerous and lead to cancer, immune dysfunction, collagen dysfunction, neurological dysfunction, etc.

Any radical diet should be carefully supervised by a doctor or dietician, with regular lab testing.

Glad Mikhaila got lucky...

Mikhaila talks that in his carnivore diet he hasn't got any vitamin or mineral deficiency in any lab work. which is pretty interesting.

 

[Learner1]

Mikhaila talks that in his carnivore diet he hasn't got any vitamin or mineral deficiency in any lab work. which is pretty interesting.

That is truly unbelievable.

 

[Shen]

That is truly unbelievable.

Well I don't remember exactly where she talks about his lab work, but she does say constantly that she doesn't have vitamin deficiencies. Look

She does take now some supplements when she does prolonged fast so maybe she does supplement in general.

https://www.facebook.com/thecarnivo...e-the-scurvy-and-vitamin-def/574884846361350/

https://twitter.com/i/web/status/1038981827493486592

 

[Hufsamor]

I haven't read the entire thread, so maybe this has been mentioned before.
But we can't get to many good news? Right?
Most of you most likely remember our friend Martin?
This is his latest updates on instagram:

 

[andyguitar]

Well it's great to see him out again @Hufsamor

 

[HTester]

I do have a problem with conditions that can't be seen to fit within the context of any of the outbreaks, because I don't see those conditions as logically being the same condition.

From my perspective, the importance of the historical outbreaks/epidemics is not so much to exclude or include patient subgroups, but rather to ask if a proposed theory for the etiology/cause of ME/CFS can account for the existence of outbreaks. I think this is another way of making @geraldt52 's point. The epidemics tell us something important about ME/CFS. Elsewhere, I've called this the "lesson of epidemics."

 

[aquariusgirl]

I know a nurse whose 5 kids recovered from CFS after embryonic stem cells. 5 years & counting now...

Is it possible it got them out of a metabolic trap? @HTester

 

[HTester]

Is it possible it got them out of a metabolic trap?

One of the problems surrounding any theory of ME/CFS that involves dysfunctional blood/immune cells is that these cells have a lifespan on the order of 100 days and are continuously being replaced from bone marrow. To explain ME/CFS (or any chronic disease) based on a metabolic trap in blood monocytes or dendritic cells, we have to postulate that the bone marrow progenitors are in the trap, otherwise, the body would cure itself in ~4 months. If those embryonic stem cells replaced the trapped progenitors with new untrapped progenitors, then yes.

How old were those kids?

 

[Wishful]

I know a nurse whose 5 kids recovered from CFS after embryonic stem cells.

How did they verify that the kids actually had ME/CFS? We're still waiting for a diagnostic test.

 

[aquariusgirl]

 

[aquariusgirl]

Ages 9 to 19. Six kids!

some of the adults who got stem cells in the same clinic didn’t report complete remission...

 

[ljimbo423]

@aquariusgirl

That video is fascinating! I can't begin to understand how or why these kids recovered but it's really intriguing.

 

[bensmith]

What a weird story.

 

[aquariusgirl]

Yeah .. & I met her ...she’s legit. Her kids are good 5 years out

 

[Guwop2]

one comment under the video ..