Hi everyone,
First off,
I want to thank you for the replies to my last post, and I apologize for not responding sooner.
I am not diagnosed with CFS. Anyway, the sleep test came back normal and the sleep doctor I was seeing didn't want to test for me Narcolepsy or any other sleep disorder. My stepmom agreed with him. Thought about seeing an endocrinologist next to see about genetics but I don't see a point, as I may never find out what's wrong, and do I really want to waste my life (and money) chasing something that may never be solved? And even if they did find out what's wrong, there's most likely noting that can be done other than what I am already doing. People here have given me wise advice.
And....I am beginning to feel better. Like...before I did before this whole two years of suck began. And I don't know why. But I 'll take it. But I still try to implement pacing.
My Mom brought up if the COVID vaccines were the thing that were making me so exhausted. And I thought she might be right. I've had the two that came out. I have lung disease-damaged alveoli from very premature birth- so getting COVID could potentially be very bad for me. Like hospital bad. We want to protect the lung tissue I have left.
I am getting the RSV vaccine too
I am considering getting the third COVID vaccine as it's recommended for people with lung diseases. But I don't ever want to be back where I was two years ago. That felt like hell.
First off,
I want to thank you for the replies to my last post, and I apologize for not responding sooner.
I am not diagnosed with CFS. Anyway, the sleep test came back normal and the sleep doctor I was seeing didn't want to test for me Narcolepsy or any other sleep disorder. My stepmom agreed with him. Thought about seeing an endocrinologist next to see about genetics but I don't see a point, as I may never find out what's wrong, and do I really want to waste my life (and money) chasing something that may never be solved? And even if they did find out what's wrong, there's most likely noting that can be done other than what I am already doing. People here have given me wise advice.
And....I am beginning to feel better. Like...before I did before this whole two years of suck began. And I don't know why. But I 'll take it. But I still try to implement pacing.
My Mom brought up if the COVID vaccines were the thing that were making me so exhausted. And I thought she might be right. I've had the two that came out. I have lung disease-damaged alveoli from very premature birth- so getting COVID could potentially be very bad for me. Like hospital bad. We want to protect the lung tissue I have left.
I am getting the RSV vaccine too
I am considering getting the third COVID vaccine as it's recommended for people with lung diseases. But I don't ever want to be back where I was two years ago. That felt like hell.