Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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From the Donate page:Also, I very much appreciate @Diwi9 's explanation of what has happened. Am I correct in understanding, then, that PR is no longer a non-profit? A hint might have been that Cort is named as the owner, but it is a big step and of course most of us are just learning of it.
Best wishes to Cort, and to the board, along with thanks to the latter as they move on from their stewardship here.
Please note that because Phoenix Rising is now being run by Health Rising. Your donations are not tax deductible. Health Rising is not a 501 (c) 3 non-profit.
Right - there will no longer be a board. Having a board is a requirement for a non-profit and having a board is no easy thing. When I was running PR we had a small board and always wanted to bulk up the board but it was always very hard to find people willing to do that. So while having a board does allow for more input in some ways it's easier this way.well, Great news then.
There will no longer be a board?
Hi bertiedog - I remember you. For those who don't know Rich (who died of a heart attack) played a huge role on the Forums and enormous threads were devoted to his hypotheses and treatment suggestions.I would like to thank Cort for coming back to add his knowledge to the forum. I notice I have been here since 2009 but I thought it actually started before that but maybe I am getting confused with another ME forum. I remember how much I learned from the much missed Rick Van K as well as Cort so hope I can continue to learn more helpful suggestions.
Although I am 75 years old now my brain is still eager to follow all the research and also its implications for possible treatments!
That's very nice Cort, I have been following you at HR btw. I still remember the methylation stuff that Rich was so hot on and even now incorporate it into my daily regime, especially the importance of folate and B12 (and for me high dose B2 as well). I think it was around 2005 when we started talking about methylation of the cell and its importance in ME.Hi bertiedog - I remember you. For those who don't know Rich (who died of a heart attack) played a huge role on the Forums and enormous threads were devoted to his hypotheses and treatment suggestions.
Agreed—a good health forum is an incredible resource—Facebook groups are hopeless in comparison. This forum and other special focus forums have sort of saved my life.I hope we can find a way to re-invigorate the Forums. I believe they are still the best means of communication available - they are the only venue that I can think of that provides the capability to track conversations and learn from them. I think that's terribly important.
Well said, Wayne! I could not agree more. This is a very positive new chapter for Phoenix Rising. It's the first website I actually joined as a member since contracting ME 20 years ago, with Health Rising being the second website. I recall immediately being impressed by the tenor of the in-depth conversations here by thoughtful PR members and followed Cort to HR for his incredibly well written articles. I'm so happy PR is now being managed, alongside HR, by @Cort again - it does indeed feel 'right'.I can't express how happy I am to hear this news. I think Phoenix Rising, Health Rising, and all its members will benefit greatly from this new development. It's something I've waited for for a long time, and now feel things are returning to their "rightful' place. Welcome back @Cort, so happy to have you back at the helm!!!.
My hope is to find ways to integrate Health Rising and Phoenix Rising and find ways to grow both. Some small changes have been made to PR to freshen it up a bit and others will be made. I will outline those in a future post.