usedtobeperkytina
Senior Member
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I have seen many say they are concerned over the government (CDC and UK) using patients that meet the Canadian definition.
This, of course, would be ideal. But don't bank on it. But I don't really think this matters that much. The key is all the other labs that are trying to verify this, using the same type of people. And I think they will.
The government has their bias and formed a definition based on that. But retrovirologists have not. They don't care who the patients are and what the label is, they are interested in the virus and what it does. I think most of the other private labs looking into this will follow the WPI standard, and likely some of their samples.
And, I think I heard WPI was also sending samples to CDC. Or was that said but not confirmed by WPI? Anyway, the labs that do include samples from WPI will likely differentiate them from the others they test.
I think WPI is likely making it very clear to those who want to validate the study (non government as well as government) that the patient choice must be strict.
And think of this, the WPI study was immediately under scrutiny by others. Questions of demographics of patients not being included in Science article and whether lymphoma patients were included came up. WPI answered those questions. And WPI was smart to get respected laboratories to do a check on their work, National Cancer Institute and Cleveland Clinic. And they kept it quite until publication. They played this right at every move.
I think maybe this time the government will not be able to twist this.
Too many people are interested in this. One of the main problems we had for so long is that any little abnormality found in us was also seen in some of population at large. And there weren't enough researchers interested in it, besides the government, to verify or follow that lead. The money and interest wasn't there to bring in more voices and more findings.
But that has changed now. We got all sorts of institutions and a whole new group of researchers, virologists, interested in this. Lab companies are interested. Drug companies will surely be interested.
If the government comes out with something totally different from the other private labs, then the preponderance of the evidence will be with the multiple private labs.
The only concern I have is a race of time. If the government comes out with an announcement contradicting the WPI finding before the private labs do, then it will squash the interest. Let's hope the private labs get theirs done first. I do think they are all acting fast. Competition is good.
Tina
This, of course, would be ideal. But don't bank on it. But I don't really think this matters that much. The key is all the other labs that are trying to verify this, using the same type of people. And I think they will.
The government has their bias and formed a definition based on that. But retrovirologists have not. They don't care who the patients are and what the label is, they are interested in the virus and what it does. I think most of the other private labs looking into this will follow the WPI standard, and likely some of their samples.
And, I think I heard WPI was also sending samples to CDC. Or was that said but not confirmed by WPI? Anyway, the labs that do include samples from WPI will likely differentiate them from the others they test.
I think WPI is likely making it very clear to those who want to validate the study (non government as well as government) that the patient choice must be strict.
And think of this, the WPI study was immediately under scrutiny by others. Questions of demographics of patients not being included in Science article and whether lymphoma patients were included came up. WPI answered those questions. And WPI was smart to get respected laboratories to do a check on their work, National Cancer Institute and Cleveland Clinic. And they kept it quite until publication. They played this right at every move.
I think maybe this time the government will not be able to twist this.
Too many people are interested in this. One of the main problems we had for so long is that any little abnormality found in us was also seen in some of population at large. And there weren't enough researchers interested in it, besides the government, to verify or follow that lead. The money and interest wasn't there to bring in more voices and more findings.
But that has changed now. We got all sorts of institutions and a whole new group of researchers, virologists, interested in this. Lab companies are interested. Drug companies will surely be interested.
If the government comes out with something totally different from the other private labs, then the preponderance of the evidence will be with the multiple private labs.
The only concern I have is a race of time. If the government comes out with an announcement contradicting the WPI finding before the private labs do, then it will squash the interest. Let's hope the private labs get theirs done first. I do think they are all acting fast. Competition is good.
Tina