I’ve been trying compression tights for about 6 weeks now with mixed results, so it’s making me wonder if I have hyperadrenergic POTS too,
@JasonUT, or maybe it’s just that I have such low energy levels that it doesn’t make that much difference to control the POTS anyway. I’m bedbound right now so I’ve only tried them 4 or 5 times for short periods. I have a 20-30 mmHg waist-high stocking, but I think I’ll try the 30-40 eventually too out of curiousity.
I‘m sure I’ve posted a version of this story on another thread already, haha, but I guess I’m just going to keep posting about it til I figure it out a little better.
The first time I had them on - put on by the sales people at my local medical supply store when I bought them - I experienced an AMAZINGLY clear-headed feeling and my HR stabilized immediately, it was such a relief.
But it didn’t last long and I ended up with an adrenaline surge and awful racing HR/high BP after about 30 mins. Took me 3 weeks to recover from that crash. The next couple of times I wore them, I was able to sit propped upright in bed with stable HR and BP for about 2 hours before becoming fatigued and taking them off, which is remarkable because usually I can’t prop myself up even a little bit without getting POTS... I even eat lying prone with the plate balanced on my chest, much to the delight of my dog who sits patiently beside my bed in anticipation that I’m going to share with her, heehee. I tried them again today because I had to be up doing something in the house, and again I felt decent for about 20 mins before having an adrenaline surge and racing HR, and I’m still feeling rather discombobulated a few hours later. So the poor results do seem to match with times when I’ve been up and exceeding my energy envelope.
I had to give it up when I got too sick to change clothes morning and night.
@lagarto, wondering if you had a similar experience when you needed to transition out of wearing them? I’m probably just going to keep experimenting very slowly with the tights over the next few months and see what else happens. I sure do miss being up, but by now I kinda feel like I’m chasing that first high from the first time I wore the tights and the feeling is just out of reach.