Complete Symptom Relief and CFS Remission Since Starting Nitric Oxide Supplement

[gregh286]

i just use a standard whey protein from bodybuilder ship, vanilla, or choc its nice/
I also made massive changes to diet.
makers only diet, nothing from factory, no additive.
I come into CFS with toxic food, alcohol and smoking not infection/virus.
I become acidic very quickly and then get metabolic shut.
I have to keep a very akaline diet to keep me akaline and high funtional

 

[Hope_eternal]

i just use a standard whey protein from bodybuilder ship, vanilla, or choc its nice/
I also made massive changes to diet.
makers only diet, nothing from factory, no additive.
I come into CFS with toxic food, alcohol and smoking not infection/virus.
I become acidic very quickly and then get metabolic shut.
I have to keep a very akaline diet to keep me akaline and high funtional

Thank you. This is very helpful. I appreciate you sharing your experience.

 

[Mary]

@Hope_eternal - I've had good results with branched chain amino acids (leucine, isoleucine and valine). They've helped my energy some and also shortened the duration of my PEM crashes, from 2 - 3 days down to 1. Several people here on PR have been helped by them.

I was alerted to BCAAs when Nutreval testing showed that my leucine was low, which is supposed to be unusual. And then I found several articles which talked about BCAAs and how they might help with ME/CFS fatigue. I take 4000 - 5000 mg a day. This is a good product and this also. I've found that the cheapest ones generally are not very effective (like everything!) I take 8 capsules a day, 4 first thing on an empty stomach and 4 late morning or early afternoon, also on an empty stomach.

This thread talks about BCAAs and PEM: https://forums.phoenixrising.me/threads/bcaas-reducing-pem.34719/

I'm not suggesting you take BCAAs in place of whey protein. However, whey protein by itself never gave me the benefits of the BCAAs.

Also, you may have looked this up already, but I looked up The Maker's Diet after @gregh286 mentioned it above, and found that the book was written by a young man who had serious Crohn's and he says this diet cured that. I have no experience with the diet, just wanted to pass on this information if you weren't aware of it.

 

[Hope_eternal]

I've had good results with branched chain amino acids (leucine, isoleucine and valine). They've helped my energy some and also shortened the duration of my PEM crashes, from 2 - 3 days down to 1. Several people here on PR have been helped by them.

I was alerted to BCAAs when Nutreval testing showed that my leucine was low, which is supposed to be unusual. And then I found several articles which talked about BCAAs and how they might help with ME/CFS fatigue. I take 4000 - 5000 mg a day. This is a good product and this also. I've found that the cheapest ones generally are not very effective (like everything!) I take 8 capsules a day, 4 first thing on an empty stomach and 4 late morning or early afternoon, also on an empty stomach.

This is very helpful information. Thank you Mary! My son has an appointment to go over a bunch of testing next Wednesday and I will bring this information to his doctor’s attention. Thank you for the links too. I’m organizing a bunch of questions for our appointment full of all the ideas and suggestions I’ve gotten here. I have tried a couple already. One being Lactoferrin but I think we need to try it again because I gave it to him the day after he got his Stelara injection and he was not doing well that week. Was not a good day to give it to him. I’ve been too afraid to try anything new on him since his crash from the overnight doctor appointment.

Also, you may have looked this up already, but I looked up The Maker's Diet after @gregh286 mentioned it above, and found that the book was written by a young man who had serious Crohn's and he says this diet cured that.

I actually heard about this diet over 20 years ago and have considered reaching out to the author. I follow Dr. Axe and he has written books with Jordan Rubin as well as had talks with him. He mainly attributes his healing to soil based probiotics and changing his eating habits which is amazing.

Thank you so much for your message! I truly appreciate it.

 

[vision blue]

@Mary What brand do you use? Thanks

 

[Mary]

Hi @vision blue - these are two products I've found to be good: Optimum Nutrition and Now Foods.

I learned the hard way that when buying from Amazon, it's important to make sure it's a reputable seller - either Amazon itself or the company which makes the product. I ordered "Optimum Nutrition" BCAAs from Amazon a few months ago and after taking them for a short while, found I was going downhill. It ended up that the BCAAs were a counterfeit product and the seller was one of those companies you've never heard of before. I'd never had a problem with this product before. In any event, I'm very careful now when ordering from Amazon.

I have been taking 4000 mg (2000 mg 2 x a day) but am increasing it to 6000 mg just to see if I can improve any. Though too much and I get insomnia!

 

[vision blue]

@Mary thats an awful experience!

 

[Mary]

@Mary thats an awful experience!

Amazon ended up refunding my money, which was good. I had to contact the manufacturer and send them pictures of the label on the bottle and they confirm that it was not one of their batch numbers and with that Amazon did give me a refund. tbh, I’m probably lucky this hasn’t happened before! I never knew I had to pay careful attention to the name of the seller on Amazon

 

[vision blue]

@Mary. never mind the refund, youre lucky ot didnt kill you! Counterfeit swiss army knives ade one thing- but oral products a whole other category of concern.

 

[Mary]

@Mary. never mind the refund, youre lucky ot didnt kill you! Counterfeit swiss army knives ade one thing- but oral products a whole other category of concern.

You're right! Actually that did occur to me at the time, but I'd forgotten about that ...