Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

M

Manders

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21
I did keto for almost a year, which helped with overall pain and improved my energy slightly. I am now unable to tolerate sugars (cane, honey, maple, etc) or onion. I believe I might have changed my gut bacteria...but no testing before and after to confirm that.
 
R

Rrrr

Senior Member
Messages
1,591
Jesse2233 said:
I think as patients and activists we need to find a way to help Naviaux accelerate these Suramin trials. It's he lowest hanging fruit to treatment besides Rituximab and Cyclophosphamide
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i agree. what does naviaux need to speed things up? a friend who is at the conference today just asked naviaux during lunch if there is an herb that could be used instead of suramin, and he it is not yet known what herbs will work. and that he expects a cure in 5 yrs. i don't have five years. we need to find out what naviaux needs, and get it to him, so we can speed this up.
 
R

Rrrr

Senior Member
Messages
1,591
if anyone knows how to email naviaux, could you private message me? i want to introduce him to a few expert herbalists who may be able to brainstorm ideas of alternatives to suramin.
 
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