Community Symposium on molecular basis of MECFS! DISCUSSION THREAD!

[Manders]

I did keto for almost a year, which helped with overall pain and improved my energy slightly. I am now unable to tolerate sugars (cane, honey, maple, etc) or onion. I believe I might have changed my gut bacteria...but no testing before and after to confirm that.

 

[Kalliope]

"The sound of a wild snail eating" suddenly got a new meaning

 

[Jill]

Is it going yet ?

 

[Ben H]

Is it going yet ?

Yes.


B

 

[Jill]

Bugger, server not responding for me . Nevermind . Thanks Ben

 

[Jill]

Yes.


B

As above

 

[Manders]

This snail stuff is awesome!

 

[Ben H]

What an interesting talk from OB/ 'Toto'!


B

 

[Rrrr]

I think as patients and activists we need to find a way to help Naviaux accelerate these Suramin trials. It's he lowest hanging fruit to treatment besides Rituximab and Cyclophosphamide

i agree. what does naviaux need to speed things up? a friend who is at the conference today just asked naviaux during lunch if there is an herb that could be used instead of suramin, and he it is not yet known what herbs will work. and that he expects a cure in 5 yrs. i don't have five years. we need to find out what naviaux needs, and get it to him, so we can speed this up.

 

[Rrrr]

Can anyone who is there ask Dr. Naviaux?

i asked my friend to ask him. she is there in person. @Sushi

 

[Rrrr]

if anyone knows how to email naviaux, could you private message me? i want to introduce him to a few expert herbalists who may be able to brainstorm ideas of alternatives to suramin.

 

[Cam Newton]

Very interesting stuff from Mark Davis!

 

[BurnA]

Mark Davis.

 

[Jennifer J]

My friend can't access the live stream (https://www.omf.ngo/community-symposium/) from her cell phone. Is there something she can do differently with her cell to make this possible? Thanks.

 

[mango]

Some of Mark Davis's slides:

http://s1377.photobucket.com/user/greenmango/library/OMF Symposium 2017-08-12/Mark Davis

 

[leela]

@mango, you're a total rockstar

 

[jpcv]

My friend can't access the live stream (https://www.omf.ngo/community-symposium/) from her cell phone. Is there something she needs to do? Thanks.

Not all browsers work, ask her if she´s using google chrome

 

[Jennifer J]

@jpcv, thanks!

 

[Jesse2233]

@Rrrr I'm in contact with Naviaux. Have sent him info on anti-purinergic herbs kudzu and stentinol. I have some ideas on leveraging the community to help him get Suramin sooner. Will post a thread seperately

Edit: that post is here http://forums.phoenixrising.me/inde...erate-dr-naviauxs-me-cfs-suramin-trial.53436/

 

[Rrrr]

@Rrrr I'm in contact with Naviaux. Have sent him info on anti-purinergic herbs kudzu and stentinol. I have some ideas on leveraging the community to help him get Suramin sooner. Will post a thread seperately

GREAT!