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Btw in wondering if ethyl pyruvate will help this
Or theobromine
Or theobromine
Cold sensitivity and its etiology--need to solve this urgently
- Thread starter frozenborderline
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Time to revisit this @rpapen77
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I was on it in the hospital and switched to dilaudid and oxy , fentanyl isn't isn't the best pain medication. It's somewhat serotonergic which makes it worse than other opioids but opioids in general are fairly safe and I don't think fentanyl is that dangerous
I had metal implants for fusion when I was healthy (pre CFS) and I don't remember any temp problems or cold sensitivity afterwards. I experienced cold sensitivity after I came down with CFS.
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We're they in back or spine ?
Yes on spine from T9 down to L2
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Oh okay so thoracic. Mine is cervical and involves skull too i don't know if that makes a difference. I don't know whats going on.
So you never had the cold sensitivity before the surgery?
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I've had cold sensitivity before the surgery but it got better when in good air. I even slept in a van outside in a new jersey winter pre surgery because the air was good .
And the cold sensitivity wasn't usually as extreme.
Then after the surgery it got worse and in winter I needed heat packs on my neck to stop spasms and scarves and stuff but it wasn't really really extreme. In the past week or two tho (which is a year or more after surgery) it got really extreme wherein I had muscle spasms and jitters and tremors just from slightly cool air... like 5 degrees under room temperature. Maybe ten degrees at most.
And the cold sensitivity wasn't usually as extreme.
Then after the surgery it got worse and in winter I needed heat packs on my neck to stop spasms and scarves and stuff but it wasn't really really extreme. In the past week or two tho (which is a year or more after surgery) it got really extreme wherein I had muscle spasms and jitters and tremors just from slightly cool air... like 5 degrees under room temperature. Maybe ten degrees at most.
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I guess it could be related to hypothalamus and pituary gland stuff: @rpapen77 could you check that out ?
So your nerves are even more hypersensitive to cooler temps now than they were before. According to the source that I follow (which I will not discuss because I refuse to get into a debate about it)........ the hypersensitivity to cold temps is due to viral neurotoxins that are making your nerves more sensitive. A possibility that follows this reasoning is that an underlying virus became more virulent after surgery/surgeries? I understand your problem with mold and very much believe that it is a problem for you but I think it is a trigger for underlying virus to act up rather than a root cause.
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Pretty sure just a mixture of midazolam propofol and fentanyl like with most major surgeries
I actually had three of them , but I only mentioned the one that put the hardware in bc I think the hardware may be connected.
I don't know my body temperature. Currently. It's always ran a bit low but didn't seem to change after surgery except when I got infections...but tbsn returned to normal upon discharge. It's always been a bit low but I stopped taking it regularly once my thyroid numbers were back to normal
I actually had three of them , but I only mentioned the one that put the hardware in bc I think the hardware may be connected.
I don't know my body temperature. Currently. It's always ran a bit low but didn't seem to change after surgery except when I got infections...but tbsn returned to normal upon discharge. It's always been a bit low but I stopped taking it regularly once my thyroid numbers were back to normal