I have had far increased cold sensitivity this year, especially since my surgeries. And increased tiredness that is different than the usual me/cfs fatigue and pem recently.
The two obvious culprits are my fusion hardware and the anemia that I seem to have developed recently especially post surgeries. But I hate having another medical mystery on my hands and am too tired to figure it out. I had an extra surgery so that makes three in three monyhs, bc I had a site infection, and now I have a picc and IV antibiotics , but the cold sensitivity started a bit before that
I need outdoor air, and in the past I've camped in freezing conditions while sick, so I don't think its inherent to me/cfs. I don't have hypothyroidism according to the latest tests, although was on steroids at the time of those tests which I've heard can artificially suppress the
Its just deeply depressing despite seeming like a small symptom bc I love being outsoors, and winter , and camping and I don't just love those things, I all but medically need them. The warmest places in winter in the US are largely the places with some of the worst air--Miami/urban/suburban Florida in general, San Diego , San Francisco and Pacific northwest.
Even if it wasn't medically necessary and I could just live in Mexico one of my dreams has been for awhile to retire to a cabin in the mountains with lovely seasons including winter. I don't think I can stand this. And its putting my recovery from surgery on hold sort of as I spend so much time not outside which exacerbates symtpoms and I move around else and have no !motivation to do PT as I won't be hiking in the Rockies or living there even
Please help fix this
Oh also its not cold hands or feet, its not peripheral only. Its like when I get cold it goes to the center of me like in my chest and hell and all through my body and I compulsively shiver so much it makes me tired, and my neck spasms in an awful way