CHROME study seeking U.S. participants for ME/CFS diagnostic biomarker study - NOW LOOKING FOR HEALTHY CONTROLS

[Mary]

CHROME Study Seeks Diagnostic Biomarkers for ME/CFS - Health Rising
(thanks to Cort again!)

This looks amazing! You can do it from home, they send you a kit to get a few drops of blood and a urine sample. There are links in the article where you can find more info and sign up -

 

[Mary]

@frozenborderline , @bensmith - tagging FYI

 

[Mary]

I submitted my email address on this page, and received an automated reply stating I'd be getting another email in a few days with questions and instructions.

 

[Sushi]

CHROME Study Seeks Diagnostic Biomarkers for ME/CFS - Health Rising
(thanks to Cort again!)

This looks amazing! You can do it from home, they send you a kit to get a few drops of blood and a urine sample. There are links in the article where you can find more info and sign up -

Thanks! I also signed up. Downside—you don’t get access to your genetic results.

 

[Wishful]

Yes, it looks promising. I think it's the most promising ME research project I've seen in a while.

 

[Mary]

I am very grateful to Cort Johnson for his amazing work in keeping us apprised of the latest in ME/CFS research and findings! I urge you all to support Health Rising !

 

[Pyrrhus]

Note that using gene expression profiles as a biomarker is not a new idea, although the technology has certainly improved in recent years.

Here's a 2009 thread by Cort that discusses this:
https://forums.phoenixrising.me/threads/gene-expression-study-gets-results.254/

And here's a Phoenix Rising article from 2011:
https://phoenixrising.me/archives/5790

And a more recent paper from 2019:
https://forums.phoenixrising.me/threads/klimas-nova-gene-expression-treatment-avenues.75491/

Phoenix Rising members with at least 100 posts may also consult this 2005 paper by Jonathan Kerr:
https://forums.phoenixrising.me/thr...l-blood-mononuclear-cells-from-patients.2178/

 

[nryanh94]

Received an email today, I’ll be participating

 

[Jyoti]

I got my kit today!

 

[Sushi]

Received an email today, I’ll be participating

I got mine yesterday, kit on the way.

 

[Rufous McKinney]

I am very grateful to Cort Johnson for his amazing work in keeping us apprised of the latest in ME/CFS research and findings! I urge you all to support Health Rising !

ITs truely exciting that so much is going on we really rely upon Cort to help track all of this.

 

[Mary]

I got my email yesterday or today, will finish filling out the form tomorrow and then wait for the kit! One thing I noticed is that in all the official verbiage about consent etc. they refer to CFS, not ME/CFS, and mention someone having or being diagnosed with "chronic fatigue" symptoms (!) - not even using the word "syndrome" - I'm going to send them an email about this.

 

[TinaYesen]

Received my response email today, as they now need healthy volunteers, I have my parents participating. Hopefully others can recruit friends/family.

 

[Mary]

Received my response email today, as they now need healthy volunteers, I have my parents participating. Hopefully others can recruit friends/family.

I got the same email. They have enough ME/CFS volunteers but now need more health volunteers. I have some family who have volunteered as well - so bumping this thread for more to see --