• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

CHROME study seeking U.S. participants for ME/CFS diagnostic biomarker study - NOW LOOKING FOR HEALTHY CONTROLS

Sushi

Moderation Resource Albuquerque
Messages
19,935
Location
Albuquerque

Pyrrhus

Senior Member
Messages
4,172
Location
U.S., Earth
Note that using gene expression profiles as a biomarker is not a new idea, although the technology has certainly improved in recent years.

Here's a 2009 thread by Cort that discusses this:
https://forums.phoenixrising.me/threads/gene-expression-study-gets-results.254/

And here's a Phoenix Rising article from 2011:
https://phoenixrising.me/archives/5790

And a more recent paper from 2019:
https://forums.phoenixrising.me/threads/klimas-nova-gene-expression-treatment-avenues.75491/

Phoenix Rising members with at least 100 posts may also consult this 2005 paper by Jonathan Kerr:
https://forums.phoenixrising.me/thr...l-blood-mononuclear-cells-from-patients.2178/
 

Mary

Moderator Resource
Messages
17,335
Location
Southern California
I got my email yesterday or today, will finish filling out the form tomorrow and then wait for the kit! One thing I noticed is that in all the official verbiage about consent etc. they refer to CFS, not ME/CFS, and mention someone having or being diagnosed with "chronic fatigue" symptoms (!) - not even using the word "syndrome" - I'm going to send them an email about this.
 

Mary

Moderator Resource
Messages
17,335
Location
Southern California
Received my response email today, as they now need healthy volunteers, I have my parents participating. Hopefully others can recruit friends/family.
I got the same email. They have enough ME/CFS volunteers but now need more health volunteers. I have some family who have volunteered as well - so bumping this thread for more to see --