I know few of those sufferers, if any, were diagnosed with CFS
That's really the issue... If we don't know if a person has ME/CFS, then we can't usefully get data from what they say. I sure don't have the time or energy to go down random rabbit holes searching for cures on youtube. You can waste a whole lot of hope that way, not to mention money.
Also, we need to know what they mean by recover. There's been threads even here on PR where people mean different things by recover ranging from feeling better for a few hours to learning how to pace to manage symptoms. Without having a firm definition, we're using a whole lot of energy.
It's even worse than searching for the needle in the haystack. It's being in the wrong barnyard before you even start to find a haystack.
I've been seeing more of these types of videos pop up too. I'm wondering why it's happening.
So when you see those videos, here are a few questions to ask:
1) Has this person been properly diagnosed with ME/CFS?
2) If not, how were they diagnosed?
3) If not, do they seem to understand what ME/CFS is? Or do they think it's generic chronic fatigue?
4) What are they describing as a recovery?
5) Is it what you would want as recovery?
6) Are the things they describe as causing recovery plausible? Ex: I learned to PACE and I take medication for POTS.
Seven) Are the things they describe as causing recovery not plausible? Ex. I did CBT and GET or I bought some proprietary program that won't give any details until after you've paid.
8) Are the things they describe as causing recovery potentially dangerous? Ex: You would call poison control if your child did them.