Yes, I agree with others, especially Jody.
I have been diagnosed with Fibromyalgia, but I can relate to so many people here with "CFS" (I hardly dare type that abbreviation, but it's quicker). I also have many other health issues, especially spinal/disc disease & chronic inflammation (which waxes & wanes).
I couldn't care less now (what anyone thinks I have), I am more concerned with my problems and not the misguided, ill-informed, un-educated, insensitive, and down-right rude people who think they know more about you & your disease.
I say distance yourself from these people, no matter how well-intentioned they think they are. I sorry to say, this may include good friends.
When you have any ICI (invisible chronic illness) of any kind, you need supportive, caring people around you. You need people who understand & appreciate where you are on any given day. They need to be sensitive to your self preservation tactics. They need to be accommodating to your limitations.
Eg I have invited a very dear old friend for lunch next Sunday. I haven't seen her (in person) for a few years. I said please come around midday, I'll throw a chicken in the oven with some steamed broccoli. I haven't the energy to do the whole roast vegetables with all the trimmings at the moment. Could she please bring some dessert - could she bring berries (easy). Could she please limit her visit to 3 hours (max).
I nearly feel asleep on a friend about 3 weeks ago when she visited - I was exhausted that Saturday.
So, feel free to communicate your needs. If you can't cope with visitors for more than an hour, feel comfortable about expressing this.
I also warn people to NOT wear any perfume, strong deodorant or whatever.
My hearing is slowly deteriorating and there are some days when I have trouble concentrating, so I (not often, I admit) ask them to speak up & not too fast. I offer them the couch or to sit with me at the dining room table, as my lumbar disc pain is better with a straight hard backed chair. I do not drink alcohol (maybe 6-7 glasses a year), any kind of soft drink with artificial sweetener or even fresh fruit juice. If they want anything besides my herbal tea, Italian coffee, English tea, they have to bring it themselves.
So my very best advice to anyone is look after number one - ie you. Of course I'm single & live on my own, so I'm able to do exactly what I wish. I try to interact with my lovely special neighbour (ex nurse) on her level sometimes & accept a glass of wine, but I am careful not to go to far outside my limitations, otherwise the next day I am much worse - pain or just too fatigued.
Pacing & leaning what works for you is the best self care. As an RN who has done much research, I imagine you will know this already.
I hope you enjoy being on this Forum. Great members & more importantly, people who genuinely care.
PS Real, genuine, caring friends will be more that happy to comply to your wishes.