Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Check out this video from 1996:
Can you believe it, all those years ago, even after the 1991-92 DeFreitas CAV retrovirus, it was still ignored. And even the assistant health minister suggested ME/CFS was caused by a retrovirus all them years ago!! Unbelievable!
I think that it is really sad to think back on what patients must have felt like in 1996. Osler's Web had just come out, there was Media Coverage, and it seemed like some kind of infection theory was sure to pan out in the next few years and then treatments. I wonder if most everyone sick at that time felt that Osler's Web, and all the exposure would turn the tide? Maybe someone can tell us how optimistic or pessimistic they felt at that time?