Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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nobody jumped on the "known" part in 1994 then?
Keep it coming. I am too far gone for this but I can sign anywhere or do easy emails.
When I told my gp about xmrv back in November, he looked it up and all he could dig up was the previous negative study from Freitas days, even my brain knows this has to stop. This is what our doctirs have to go by.
Dont let this go -- Most are too young to know what happened with syphyliss- terrible. But now Freitas happening all over again. We cant let that happen again.
glen
At CDC Tom Folks was astounded at Heneine's insubordination. Heneine told Folk's he refused to work on such nonsense as 'CFS'. Folks had to tell him: I am your superior; you will work on this. he did significant things wrong every single time and they had to repeat the attempt to find defreitas' rv over and over never getting it right and following defreitas' instructions. they refused an offer from defreitas to come to cdc to help them do it right on her own dime after cdc said they could come to philly but defreitas would have to pay for it. the whole thing is sickening; heneine and reeves can't stop lying ever or their whole scheme will fall apart and they'll go to prison.