CCFS Advisory Committee Meeting - Will be Webcast Live
- Thread starter Summer
- Start date
Sorry I misread that listening to the CFSAC meeting - doh! (thought you said what does it stand for)
K
_Kim_
Guest
Wonderful Cort! Thank you so much for speaking for Dr. Lapp. (YOU LOOK GREAT ON TV!!!)
rebecca1995
Apple, anyone?
- Messages
- 380
- Location
- Northeastern US
You go!
Great job, Cort!
Great job, Cort!
M
markmc2000
Guest
well delivered cort
Very powerful and clearly communicated Cort. First class, thank you very much for taking initiative.
Mark
Very powerful and clearly communicated Cort. First class, thank you very much for taking initiative.
Mark
A
anne
Guest
I missed CORT?
Marylib
Senior Member
- Messages
- 1,168
I missed everything, being on NZ time...
Does anyone know if I can watch it anywhere?
Does anyone know if I can watch it anywhere?
K
_Kim_
Guest
Marylib, the meeting just ended for the day and will resume tomorrow 9:00am EST.
anne, yes you missed Cort - looking fabulous and speaking on behalf of Dr. Lapp
anne, yes you missed Cort - looking fabulous and speaking on behalf of Dr. Lapp
Martlet
Senior Member
- Messages
- 1,837
- Location
- Near St Louis, MO
That was brilliant. Even my husband watched it with me all day. We did a lot of crying at the personal testimonies and also when listening to Dr. Bell. Then Cort came on and there was I, jumping up and down in my seat yelling "That's OUR Cort."
Good job, Cort.
Good job, Cort.
K
_Kim_
Guest
Love this quote from the wall of WPI's facebook page:
"That's one small step for XAND. One giant leap for XANDKIND."
"That's one small step for XAND. One giant leap for XANDKIND."
K
_Kim_
Guest
For everyone who missed Cort (and the rest of the meeting)...this event will be available for on-demand viewing in the Past Events archive as soon as possible, usually within a few days.
Frickly, Dr. Bell talked on Factitious Disorder and CFS in Adolescents. His PPT was posted on the agenda page for the meeting (scroll to 3:30).
But...the better part (IMO) of his talk was the Q&A after his PPT. Take home message: childhood sexual trauma does not cause CFS!!!!
Frickly, Dr. Bell talked on Factitious Disorder and CFS in Adolescents. His PPT was posted on the agenda page for the meeting (scroll to 3:30).
But...the better part (IMO) of his talk was the Q&A after his PPT. Take home message: childhood sexual trauma does not cause CFS!!!!
Martlet
Senior Member
- Messages
- 1,837
- Location
- Near St Louis, MO
Levi ... Who are we suing? 
K
_Kim_
Guest
Klimas comment
And one of the best comments of the day from Nancy Klimas: "Doctors are causing post traumatic stress disorder".
And one of the best comments of the day from Nancy Klimas: "Doctors are causing post traumatic stress disorder".
Kati
Patient in training
- Messages
- 5,497
Ohhhh I missed Cort and I missed Nancy saying that! (Instead I had to go educate my family dr about XMRV
)Will watch it as soon as it comes outEssentially what I retain is many people have scolded the CDC but especially the CFS program for their non-existent support and also the crimes they have committed.
K
_Kim_
Guest
A Senior Moment
I just noticed that some time today - in making comments on the meeting - I had a senior moment. That is, I was promoted to "senior member" here (more than 100 posts). How'd that happen so fast??
I just noticed that some time today - in making comments on the meeting - I had a senior moment. That is, I was promoted to "senior member" here (more than 100 posts). How'd that happen so fast??
K
_Kim_
Guest
Andrea Whittemore just posted her take
From the WPI Facebook Wall
"Okay so here we go. At first social security guy talked , then Dr. P then Wanda happened , then Annette, then Dr. P, then John CoffinPHD, then xmrv stuff funding that sort of thing, then lunch , vomittee (very funny typo Andrea!!) meeting , personal stories that were heart wrenching , then people hitting hard on DHHS and CDC, then Dr. Bell more ...heartwrenchkng pediatric stories , then more private stories of families devestated by ME/CFS! Wow best meeting Ive ever seen . And I've been to A lot !!! Sat through 48 hours once . Had no clue yiu could pick and choose .
The news about twins , fibromyalgia , autism, CFS was the most compelling data that XMRV very seriously needs to be looked at. Do not donate blood and the head of blood supply is coming to tomooroe's meeting . This doesn't even tap the iceberg that just hit Washington , DC. !!!
it's a whole new day tomoorow . And I thnk for all of it's a whole new world of research possibilities for ME/CFS"
"This is what people missed emotionally: boredom, shock, anger , frustration , misery , sadness, disbelief , enlightenment, happiness, joy and all over again for 8 hours!"
From the WPI Facebook Wall
"Okay so here we go. At first social security guy talked , then Dr. P then Wanda happened , then Annette, then Dr. P, then John CoffinPHD, then xmrv stuff funding that sort of thing, then lunch , vomittee (very funny typo Andrea!!) meeting , personal stories that were heart wrenching , then people hitting hard on DHHS and CDC, then Dr. Bell more ...heartwrenchkng pediatric stories , then more private stories of families devestated by ME/CFS! Wow best meeting Ive ever seen . And I've been to A lot !!! Sat through 48 hours once . Had no clue yiu could pick and choose .
The news about twins , fibromyalgia , autism, CFS was the most compelling data that XMRV very seriously needs to be looked at. Do not donate blood and the head of blood supply is coming to tomooroe's meeting . This doesn't even tap the iceberg that just hit Washington , DC. !!!
it's a whole new day tomoorow . And I thnk for all of it's a whole new world of research possibilities for ME/CFS
""This is what people missed emotionally: boredom, shock, anger , frustration , misery , sadness, disbelief , enlightenment, happiness, joy and all over again for 8 hours!"