Research 1st
Severe ME, POTS & MCAS.
- Messages
- 768
Well that's correct as CBT is brainwashing, self administered, via coercion.
In addition, religions are defined as cults, and psychiatry is a form of religion, a belief system (No science is needed).
We thus have the psychiatrist and psychologists practising the denial of organic ME and the ritualistic nature of delivering CBT GET for a form of MUS (CFS) as a form of therapy in the belief, this is right and just. No medical investigations and tests are needed. This is most unlike the practice of medicine, in which a doctor performs tests to see if they can decipher the reasons behind reported symptoms, or disease signs that may have been diagnosed in a clinic when in discussion with the patient.
So the cult label is correct for the ME sufferer experiencing the strong arm of CFS psych religious followers yes. However, the mental health patient, it's quite acceptable. It's also excused on the basis of a kind of be cruel to be kind treatment protocol of stopping them from somatizing, stopping them from having medical tests, and stopping them thinking about being 'ME'. The sad fact is, there are a small minority of misdiagnosed (psych patients), who are mentally ill , who do respond to CBT and GET. We usually hear of them in the media, and on-line citing absurd recovery claims. (See youtube).
The problem we have is the psych CFS 'researchers' excuse is that most CFS is psych and ME doesn't exist. Yet we know the honest observation, is maybe only 10% of CFS patients are psych patients, and so as that's a fact, the other 90% who are biologically ill, can be ignored and go elsewhere in the view of those who deny ME. Except there is no elsewhere to go!
This psych CFS lobby's mindset is: Defiance, and stubbornness. A refusal to see the real risk of what is happening by destroying the legitimacy of organic ME (via psych CFS) and leaving ME patients without appropriate care, and without legitimacy. Yet patients need this legitimacy to get medical treatment!
The same situation would occur if we created a condition called CFS/MS with no diagnostic tests. The genuine MS patients wouldn't recover and would be left without a care package, a small percentage of psych MS would response to CBT GET. Orphans aren't liked by everyone, especially by the people who caused the person to become homeless in the first place.
The Swedish news, is simply a one-way mindset in action. It's not ignorance (biomedical research in CFS has been around for decades), it's defiance, and approved refusal to allow for subsets in their 'theories' of what CFS is (MUS) in their minds.
With better biomedical research this should change in the next few years, aided by the genuine ME patients remaining visible, learning the science themselves, and correcting those with outdated knowledge.
In a country like Sweden, with that achieved ME patients who are harmed by the 'therapy' can remind practitioners who dismiss their suffering (from CBT GET) that they will sue for any damages that occur in these 'behavioural clinics'. We now know, that ME CFS has no evidence base that it is primarily a mind-body fatigue disorder. There is no evidence for that at all, even in F48.0 PACE trial participants. Hence people claiming ME CFS = MUS, will likely end up in court once their ideas end up harming a patient, who has money, or knows someone influential who can put their story in the media about how they relapsed with CBT GET.
