Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To register, simply click the Register button at the top right.
I dont really have fatigue muscle WiseThat's an impressive amount any way you slice it!
What is your fatigability vs recovery time like?
That's certainly something to consider, especially since people with ME/CFS usually don'tThats why i was asking if it s still possible, cause im Starring to suspect its more like a d-lactic acidosis or something like that
I feel even better if i workout than if i dont.
Yup, I could exercise at first and didn't recognize the early warning signs of never being able to repeat my performance level on a consecutive day, not showing improvement in my exercise stamina in general,
Yes, I want to agree: My long, intensive riding tours had been limited to two times a week. Three times slowly announced a profound worsening, so let it. Apart from some training effect over the course of weeks beginning with spring, there was no conditioning possible. Normal thinking is in regard of this illness dangerous. (Stay alert!)I definitely used to be able to do what I wanted in the early years of this disease. I had zero idea that my active lifestyle was the reason for my chronic sick. I actually thought I would get better forcing myself to be very active. Until it destroyed me.
I mean people with ME/CFS don't feel better after working out.
That statement is not true. It might be true for 80% or 95% or whatever of PWME, but not 100.00%. kjes22500 and Percyval577 and myself are three examples of PWME who doesn't suffer from the common physical limitations or the aftereffects of physical exertion. There have been others reporting here with similar stories. I don't know what the percentage is, but it seems enough to prove that the physical problems are not an essential part of ME; it's just very common.
not even cognitive ones?
What do you find affects it?
i can still do some exercices, maybe 300-500 push ups in a day and i feel better right after it, while i read that cfs/me patients have exerices intolerance.
But i seems to have pretty much all other symptoms and doctor think it's cfs, so what is your opinion?
um straight up no, you don't have it. I'm no doctor but in order to have it you must have PEM. Meaning you could do that insane amount of push ups but later, even 2 days later, you would want to die and get very ill. Even when i was very mild as a teen and young adult, i could exercise but i would end up getting sick. Or i would be fine for a long time and then get really run down with all kinds of the classic symptoms. Only looking back and seeing some old doc notes did i realize that i had a very mild case of CFS/ME back then. I thought nothing of it as it was just my norm. Then, i got very ill and knew something was very very wrong with me. Then the cognitive symptoms hit.
There are a gazillion diseases that cause fatigue. You have something else in my non doctor opinion. You are sick, but keep searching for answers with docs. That's my advice. PEM is the classic symptom and PEM can come from any and all activity, even sedentary and will build, so you may get away with more activity than normal and think you are doing better but keep going and then get set back. It's a super tricky illness.
I'ld say, congrats, you have something else going on and hopefully, you can find a way out and be well!