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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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@Hip ....but there are many doctors who believe what we call autoimmunity is actually undetected chronic infection/ some autoimmune disorders such as sarcoidosis, is known to remit with antibiotics....
What is your CD4 level?
Is a Doctor who prescribed you Valtrex or do you intend to take it on your own?
@Daffodil This is a strong argument in favor of the idea that CFS is contagious. How do you know that you got ill after exposure to saliva and not in another way?@sorin ..this board is full of people who have mild AIDS-like symptoms - some have even gotten ill after sexual encounters - but they do not have HIV.
many of us became ill after exposure to someone's saliva. that almost never happens in HIV
Sorry not up to reading the whole thread, I think it was Dr Tim Jackson, I'll try to check later on, who said in a radio interview that the old way of thinking with regards to IgG and IgM is wrong, if IgG is more than twice the normal range then this can indicate a current infection. The where and whys of it I can't explain. I think maybe the CMV should be re-visited. Also have you ever been tested for Lyme?
Hi all!
@Daffodil @maryb
About Lyme:
I was twice tested for Lyme (Borrelia burgdorferi IgG and IgM) and both were negative (for both IgG and IgM), but I did not test at the laboratory in Germany @Daffodil suggested (maybe I should do that for peace of mind). Form what I know this disease is caused by ticks which remains under skin. I mean should know if was bitten by a tick because the red spot is enough visible and even more the insect is inside your body. Is this correct? How was in your case @Daffodil ? The bites of the tick remained unobserved for years?
Regarding IgG levels: something very confusing for me happened these days. I tested for CMV (IgG, IgM and viral load through PCR) and the results were
IgG >500 where >1 means positive; actually I think the device could not measure the value, because it was too high for it to detect. Do not know even today if it was a device error or reality? Maybe I should repeat the test at the same lab.
IgM = 0.28 <1 - negative
CMV not detectable
So coming back to this post, "IgG is more than twice the normal range then this can indicate a current infection" - in my case seems to be 500 times bigger (!?!) so it should be current infection? But CMV PCR not detectable means there is no current viral load at the DNA level? I am very confused.
well, i was totally fine until i kissed someone who was ill. have heard the same story many times from others. in some cases, entire families have CFS.@Daffodil This is a strong argument in favor of the idea that CFS is contagious. How do you know that you got ill after exposure to saliva and not in another way?
Also, I recommend everyone (if not already watched) to watch this movie "House of numbers" which is free on YouTube. You will see how many lies were told to the public in the last 30 years about HIV and AIDS.
there's a new test that dectets nearly any virus but unfortunately is not yet available to the public. however, I encourage everyone to contact the persons behind this research to see if there's any chance we can take this test
High throughput sequencing — used by Dr Ian Lipkin in his study on ME/CFS patients (where he found retroviral infections in 85% of ME/CFS patients, incidentally).
It would be great though if we had an inexpensive, commercially available DNA microarray lab test that all doctors could use. At present DNA microarrays don't seem to have made it out of the research